Tag Archives: Patient Empowerment

Participatory Medicine

Lessons Learned From Patient Stories

Editor’s Note: This week, Engaging Patients revisits a post by Jan Oldenburg, editor of Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation. Jan interviewed 27 patients and caregivers whose stories are featured in the book. In this post, she highlights themes that emerged from the interviews and reflects on the central role patient stories can play […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Shifting the Paradigm

The engaged patient is an anomaly. Let’s fix the paradigm.

For years this blog has been discussing the value and legitimacy of engaging patients as a path to better care. Yet we don’t see a stampede of people—providers or patients—rushing to do it. Why not? I’ve been advocating for participatory medicine for years, more than 500 events in 15 countries. Through that experience, I’ve observed […]

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Dave deBronkart, known on the internet as e-Patient Dave, is author of Let Patients Help: A Patient Engagement Handbook and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007, he became a blogger, health policy advisor and international keynote speaker. An accomplished speaker in his professional life before cancer, he is today one of the best-known spokesmen for the patient engagement movement. Dave is also a co-founder (with his physician) and chair emeritus of the Society for Participatory Medicine. Dave’s TED Talk, “Let Patients Help,” went viral. Volunteers have added subtitles in 26 languages, indicating the global appeal of his message. In 2012 the National Library of Medicine announced that it would capture his blog in its History of Medicine Division, and in 2015 he was the Mayo Clinic’s Visiting Professor in Internal Medicine.

e-Patient Dave deBronkart has 2 post(s) at EngagingPatients.org

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Paths to Improved Patient Engagement

Feeling Calm, Cool and Collected: A Vital Foundation for Effective Patient Engagement

Emotional well-being is not easy to measure, especially when compared to an improvement in blood sugar or blood pressure. Yet, I’m struck by how often patients use the adjective calm when describing health situations, explaining why they like their provider’s demeanor or wishing there was respite in a crisis. Calm need not connote ignorance, avoidance […]

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Elissa Schuler Adair, PhD Elissa Schuler Adair, PhD, is a consumer health advocate committed to providing patients with the information and support they need to make the health decisions that are best for them and their families. Elissa served as Manager of Health and Survey Research at Consumer Reports Magazine from 2008-2013. She is now Director of Communications and Outreach for Donate Life Northwest.

Elissa Schuler Adair, PhD has 1 post(s) at EngagingPatients.org

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Paths to Improved Patient Engagement

Reframing Patient Care through eHealth: A Powerful Toolkit for Patient-Specific Engagement

Editor’s note: In February, Dr. Graffigna presented an evidence-based model for patient health engagement. In this contribution, she offers concrete guidelines for integrating new communication technologies into the care process to more effectively engage patients. . Making patient active and engaged in their healthcare is the gold standard in the 21st century health policy and […]

Through the Eyes of Patients

My Surgical Shared Decision: Trust the Doctor

My surgeon and I are discussing his planned use of sutures. He is standing, leaning against a wall. I am opposite him, lying on a gurney in a hospital gown, the IV taped to my hand dripping antibiotics as the clock ticks down to when I’ll be wheeled into the operating room. This may not […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 13 post(s) at EngagingPatients.org

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Best Practices and Methodologies

Viewing Patient Engagement through the Patient’s Eyes: A Must for Real Healthcare Innovation

Worldwide, patient engagement is becoming a “must do” for academics, industries and policy makers in the healthcare arena. The academic and managerial “buzz” on patient engagement is growing at a dizzying pace. In 2015, 665,300 new web indices were found on Google.com with the key words “patient engagement,” including 1,230 news pages and 6,200 dedicated […]

Paths to a Better Care Experience

Patients Demand a Connected Healthcare Experience

When it comes to engaging with consumers – with patients – through and with technology, the healthcare industry has room for improvement as compared to other industries. Consumers interact with technology across most other aspects of their lives every single day, from banking, to buying almost any consumer good imaginable, to watching or listening to […]

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Paul Uhrig, Chief Administrative, Legal, & Privacy Officer, Surescripts Paul Uhrig is the Executive Vice President, Chief Administrative, Legal & Privacy Officer for Surescripts. He is responsible for a number of critical corporate functions, including internal information systems, internal audit, legal, privacy, security, policy, and governmental affairs, as well as certification compliance, a critical function that is part of Surescripts’ larger focus on quality and patient safety. Mr. Uhrig is also responsible for the Surescripts Enterprise Services business unit, operating an e-prescribing application, a patient portal, and automated clinical messaging technology.

Paul Uhrig, Chief Administrative, Legal, & Privacy Officer, Surescripts has 1 post(s) at EngagingPatients.org

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Bridging the Health Literacy Gap

Healthcare Coaches: The Health System’s Missing Link

By the year 2020, over 157 million people will have chronic diseases and will be seeking medical care1. When you add this to the fact that there is a shortage of primary care providers, healthcare coaches become an integral part of population health. I am a pharmacist with a burning passion to empower patients. I […]

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Sarah Riley Cox, PharmD Sarah Riley Cox is the founder and CEO of My Med Coach. Sarah holds a Doctorate in pharmacy and is working towards completing her Master of Science in pharmacy leadership and administration along with her health-system pharmacy administration residency. In her spare time, Sarah blogs on My Med Guru to empower and educate patients about the healthcare system. Sarah envisions a healthcare system with smooth transitions, engaged and empowered patients, and no medication errors and she works toward this goal in everything that she does.

Sarah Riley Cox, PharmD has 1 post(s) at EngagingPatients.org

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The Transformation of Healthcare

Changing Behavior in Healthcare goes Both Ways

There is a lot of talk in the patient engagement space about helping patients change behaviors to live healthier lives. But healthcare providers — from hospitals to physicians to staff — could use some behavioral change as well. That was a constant discussion at the inaugural Modern Healthcare Strategic Marketing Conference held this week in […]