Tag Archives: Shared Decision Making

Patient Engagement

Further Adventures on the Learning Curve

Earlier this month, I wrote about a friend who went through a coronary stent procedure as an engaged patient. I talked with him frequently throughout the experience, supporting his instinct to ask questions and participate in decision-making. Looking back, we see our attempts at gathering information and educating ourselves as a mixed bag. This adventure […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 25 post(s) at EngagingPatients.org

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Patient Engagement

Decision-making on the Learning Curve

Being an engaged patient is a natural extension of my work in healthcare safety and quality, so when a friend was told he might need a coronary stent, I responded by searching for information and asking questions. I was glad to be able to help and to see my friend engaged in his care. In […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 25 post(s) at EngagingPatients.org

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Patient Rights

Patients’ Lack of Political Power Torpedoes Power Sharing

There may be no better demonstration of the political weakness of the patient rights movement than Medicare’s recent cancellation of a major initiative on shared decision-making. Let’s briefly examine the evidence: 1) The program was cancelled; 2) Although six clinical conditions were to be part of the effort, its demise attracted only brief mention in […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 16 post(s) at EngagingPatients.org

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Choosing Wisely

Empowering Patients: Help Them Ask the Hard Questions

Editor’s Note: This week, we revisit and update a post from one year ago. In the original post, Randi Oster relates a personal story to illustrate the value of the Choosing Wisely campaign. Sponsored by Consumer Reports and the American Board of Internal Medicine Foundation, Choosing Wisely helps patients navigate medical decision-making by providing information […]

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Randi Redmond Oster Randi Redmond Oster is author of Questioning Protocol, which helps patients navigate the healthcare system and medical professionals understand the patient perspective. She is a nationally acclaimed speaker on healthcare reform, shared decision-making and patient engagement. Randi spent approximately 20 years working at GE on complex aerospace systems and building profitable financial services businesses. She received a Black Belt in Six Sigma Quality and numerous leadership awards. The skills she gained at GE empowered her to effectively navigate the healthcare system and find opportunities for process improvements as she advocated in hospitals on behalf of her chronically ill son. Randi is president of Help Me Health, a business focused on the transformation of how healthcare thinks about and delivers patient experiences to achieve better outcomes and a better bottom line.

Randi Redmond Oster has 4 post(s) at EngagingPatients.org

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Health Literacy

Understanding the Power of Health Literacy

Providing patients and family caregivers with understandable health information might seem like common sense, but it’s not as common as you might think – and its impact on care has big implications when it comes to health outcomes and the cost of healthcare. The Institute of Medicine defines health literacy as “the degree to which […]

Shared Decision Making

Engaging in Uncertainty

Patient engagement is often described in the context of shared decision-making or health literacy. Engaged patients educate themselves, ask questions and make informed choices: Which approach to cancer treatment is right for me? How can I change my diet to improve my health? What do I need to know to ensure I’m managing my parents’ […]

Health Literacy

Health Literacy: Making the Case to Organizations

Picture this: you are speaking to a group of leaders in a health system. They aren’t on their smartphones answering emails; they are engaged, interested and listening to every word you say. How great would that feel? I know; I know. This is not reality. So the question becomes, how do you engage these decision-makers […]

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Christopher Trudeau, JD Christopher Trudeau, JD, has a dual appointment as an associate professor in the UAMS Center for Health Literacy and as an associate professor of law at the UALR Bowen School of Law. Chris is an expert on health literacy, plain language and the law. His views are his own; they do not necessarily represent those of his employers. He may be reached at ctrudeau@uams.edu.

Christopher Trudeau, JD has 7 post(s) at EngagingPatients.org

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Patient-Centered Communication

Improving Patient Engagement Through Clear Health Communication

What do health literacy, health communication, shared decision-making, patient education and patient engagement have in common? They all focus on the individual patient being an essential part of the healthcare system, which is a step in the right direction, given the paternalistic past of healthcare. Too often, these fields are seen as distinct efforts, each […]

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Christopher Trudeau, JD Christopher Trudeau, JD, has a dual appointment as an associate professor in the UAMS Center for Health Literacy and as an associate professor of law at the UALR Bowen School of Law. Chris is an expert on health literacy, plain language and the law. His views are his own; they do not necessarily represent those of his employers. He may be reached at ctrudeau@uams.edu.

Christopher Trudeau, JD has 7 post(s) at EngagingPatients.org

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Participatory Medicine

Lessons Learned From Patient Stories

Editor’s Note: This week, Engaging Patients revisits a post by Jan Oldenburg, editor of Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation. Jan interviewed 27 patients and caregivers whose stories are featured in the book. In this post, she highlights themes that emerged from the interviews and reflects on the central role patient stories can play […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Shared Decision Making

It’s Time to Truly Share the Chemo Decision with Cancer Patients

You (or a loved one) has cancer, but the latest round of chemotherapy has unfortunately had only a modest impact. While you’re acutely aware of the “wretchedness of life that becomes worn to the nub by [chemotherapy’s] adverse effects,” you’re also a fighter. How do you decide whether to continue with chemo? The answer to […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 16 post(s) at EngagingPatients.org

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