Tag Archives: patient-centered care

Patient-Centered Care

Engaging Patients in Radiology

Exiled in a basement reading room, radiologists work alone intently, silently at computer screens that provide the only source of light – this stereotype casts radiology as one of the least person/patient-centered medical specialties. Although there is an element of truth in that stereotype, the radiology community is working to evolve into a patient-centered practice. […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 27 post(s) at EngagingPatients.org

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Patient-Centered Care

Transgender Patients and True Patient-Centered Care

I’ve had an opportunity recently (here and here) to write about patient safety in the context of care for transgender patients. Thinking about issues related to providing them with safe and effective care leads back to the basics of patient-centered care. Patient centeredness is hardly a new concept, but thinking about it through the eyes […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 27 post(s) at EngagingPatients.org

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Collaborative Health

From Patient-Centered to Collaborative Health

“Patient-centered care” was a term coined in the 1980s as a professional response to increasingly vocal patients’ demands for genuine empowerment. Three decades later, patient-centeredness is still necessary, but powerful economic, technological and social forces are bringing about new relationships in healthcare that patient-centeredness fails to adequately encompass. In a recent issue of the BMJ, […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 16 post(s) at EngagingPatients.org

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Participatory Medicine

Lessons Learned From Patient Stories

Editor’s Note: This week, Engaging Patients revisits a post by Jan Oldenburg, editor of Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation. Jan interviewed 27 patients and caregivers whose stories are featured in the book. In this post, she highlights themes that emerged from the interviews and reflects on the central role patient stories can play […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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2017 Sherman Award Winners

Simulation Training for Patient- and Family-Centered Care

Editor’s Note: Congratulations to the Client & Family Centered Care Simulation Development Team at Holland Bloorview Kids Rehabilitation Hospital in Toronto, Ontario, one of two winners of this year’s Sherman Award for Excellence in Patient Engagement. They received the award at the National Patient Safety Foundation’s Patient Safety Congress in May 2017. The Sherman Award is co-sponsored […]

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Kathryn Parker, PhD, is senior director of the Teaching and Learning Institute at Holland Bloorview Kids Rehabilitation Hospital and assistant professor in the Department of Paediatrics at the University of Toronto, an affiliated scholar with the Wilson Centre for Research in Education and evaluation consultant to the Centre for Interprofessional Education at the University of Toronto. In 2013, she was awarded the AMS Phoenix Fellowship to explore the value and utility of a new program evaluation framework.

Kathryn Parker has 1 post(s) at EngagingPatients.org


Patient-Centered Care

An Engaged Patient Who Knew Something Was Wrong

Her usual doctor was out of town when Beth felt a lump on her right breast and under her arm. As she sat in the doctor’s office listening to a new nurse practitioner explain why she didn’t think an imaging test was necessary, Beth knew something was wrong. People in the medical profession—really anybody—can see […]

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Tom A. Augello is the editor/producer of multimedia for the CRICO medical malpractice insurance program, a group of companies owned by and serving the Harvard medical community, with an established reputation as a leader in evidence-based risk and claims management. CRICO offers many resources for clinicians, including guidance for responding to adverse events.

Tom A. Augello has 1 post(s) at EngagingPatients.org

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Patient-Centered Communication

Race and Ethnicity, and Engagement That’s Right

Editor’s Note: This week, we reached into our archive to bring you this “Encore Performance” from Michael Millenson who speaks candidly about the assumptions we make about people “different from us” and their implications for meaningful patient engagement and activation.   A few years ago, I was upgraded to First Class on a flight from […]

Patient-Centered Care

Participatory Healthcare: Lessons from Listening to Patient Stories

I recently interviewed a great many patients and caregivers as a part of research for the book, Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation, published in August by CRC press. Through the process of interviewing the 27 individuals whose stories are represented in the book, I grew to appreciate how important it is to […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Patient-Centered Communication

Addressing Health Literacy Can Advance Patient Engagement

Since October is Health Literacy Month, this is a good time to look at how addressing health literacy can help healthcare organizations advance patient engagement. An individual’s “health literacy” refers to their capacity to find and use information and services to take care of their health.[1] A “health literate healthcare organization” refers to an organization […]

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Audrey Riffenburgh Audrey Riffenburgh, M.A., is the President of Plain Language Works, a plain language and health literacy consulting firm. She is a PhD Candidate in Health Communication at the University of New Mexico. For over 20 years, she has guided healthcare systems and organizations across the U.S. in communicating effectively with diverse audiences and in mastering organizational change to become a “health literate organization.” Ms. Riffenburgh was also the Health Literacy Specialist for an academic medical center for several years.

Audrey Riffenburgh has 1 post(s) at EngagingPatients.org


Patient-Centered Care

Improving the Patient Experience: Best Practices for Becoming Dementia Friendly

The future success of providers hinges on an understanding that societal health is more than just about population health and that ACO players are not just hospitals, physicians and long-term care entities. Rather, employers, banks, supermarkets–in short, the community–all play a role when it comes to understanding dementia, including Alzheimer’s. Caring for family caregivers in […]

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Anthony Cirillo, FACHE Anthony is president of The Aging Experience. He helps organizations craft experiences and seize opportunities the mature marketplace. He helps family caregivers thrive and individuals make educated aging decisions. A consultant and professional speaker, Anthony is a monthly contributor on The Charlotte Today program, the about.com expert in Senior Care, an executive board member of CCAL, and a member of the Dementia Action Alliance. In his home community, he participates in Huntersville CARES, a dementia-friendly community initiative, and is a board member of the Lake Norman Family Health Clinic. As someone who helped launch the patient experience movement, Anthony has a unique ability to envision the future state of health care, see solutions before others see problems and formulate answers before people understand the question. He has been called innovative, inventive, original and resourceful. He provides logical support for futuristic thinking and makes difficult to understand ideas easier for people to comprehend. Anthony can connect the dots in healthcare. CEOs retain him for big- picture thinking.

Anthony Cirillo, FACHE, ABC has 5 post(s) at EngagingPatients.org

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