Tag Archives: Participatory Medicine

Health Literacy

Health Literacy: Making the Case to Organizations

Picture this: you are speaking to a group of leaders in a health system. They aren’t on their smartphones answering emails; they are engaged, interested and listening to every word you say. How great would that feel? I know; I know. This is not reality. So the question becomes, how do you engage these decision-makers […]

Shifting the Paradigm

Encore Presentation: Engaged Patients Are the New Paradigm

Editor’s Note: This week, we revisit a post written by “e-Patient” Dave deBronkart, whose thoughts are always evolving. In an article published in July in the Beryl Institute’s Patient Experience Journal, deBronkart continued to develop ideas that he explored for Engaging Patients in April: the pace of progress toward engagement and the kind of change that […]

Participatory Medicine

OpenNotes: Creating a Solid Foundation for Engagement

I’m one of more than 17 million Americans who now have access to the visit notes my doctors write after my appointments with them. Here’s what I want my doctors to know: I’m a good listener – really, I am – but when I read my visit notes, I realize that I miss a lot […]

Collaborative Health

From Patient-Centered to Collaborative Health

“Patient-centered care” was a term coined in the 1980s as a professional response to increasingly vocal patients’ demands for genuine empowerment. Three decades later, patient-centeredness is still necessary, but powerful economic, technological and social forces are bringing about new relationships in healthcare that patient-centeredness fails to adequately encompass. In a recent issue of the BMJ, […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 13 post(s) at EngagingPatients.org

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Participatory Medicine

Lessons Learned From Patient Stories

Editor’s Note: This week, Engaging Patients revisits a post by Jan Oldenburg, editor of Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation. Jan interviewed 27 patients and caregivers whose stories are featured in the book. In this post, she highlights themes that emerged from the interviews and reflects on the central role patient stories can play […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Effective Communication SKills

Patients’ Communication Skills Matter, Too

The patient safety movement and efforts to honor patients’ preferences emphasize the importance of skillful communication on the part of physicians and other clinicians. Less attention has been paid to the effect of patients’ communication skills. In addition to catching errors, patients can use effective communication skills to improve their health and the medical services […]

Participatory Medicine

Empowering Patients: Build Confidence in Them to Ask the Hard Questions

The Patient Perspective I brought my 79-year-old dad to the emergency room because to me it looked like he’d had a stroke. He could not hold up his Carvel ice cream cup, and his mouth was drooling and sagging. After 11 hours of waiting in the ER and undergoing a CT scan, an attendant brought […]

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Randi Redmond Oster Randi Redmond Oster is president of Help Me Health and the award-winning author of Questioning Protocol which helps patients navigate the healthcare system and medical professionals understand the patient perspective. Randi spent the first 18 years of her career in GE working on complex aerospace systems and building profitable financial services businesses. The skills gained in GE empowered her to effectively navigate the healthcare system and find opportunities for process improvements, as she advocated for her chronically-ill son in the hospital. Today, she is a Malcolm Baldrige Examiner focusing on healthcare and a leading speaker on healthcare reform, shared-decision making and patient engagement. www.HelpMe-Health.com Randi is also on Twitter @helpme_health, Facebook (HelpMeHealth1) and on LinkedIn.

Randi Redmond Oster, President, Help Me Health has 3 post(s) at EngagingPatients.org

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Patient-Centered Care

Participatory Healthcare: Lessons from Listening to Patient Stories

I recently interviewed a great many patients and caregivers as a part of research for the book, Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation, published in August by CRC press. Through the process of interviewing the 27 individuals whose stories are represented in the book, I grew to appreciate how important it is to […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Paths to Improved Patient Engagement

Feeling Calm, Cool and Collected: A Vital Foundation for Effective Patient Engagement

Emotional well-being is not easy to measure, especially when compared to an improvement in blood sugar or blood pressure. Yet, I’m struck by how often patients use the adjective calm when describing health situations, explaining why they like their provider’s demeanor or wishing there was respite in a crisis. Calm need not connote ignorance, avoidance […]

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Elissa Schuler Adair, PhD Elissa Schuler Adair, PhD, is a consumer health advocate committed to providing patients with the information and support they need to make the health decisions that are best for them and their families. Elissa served as Manager of Health and Survey Research at Consumer Reports Magazine from 2008-2013. She is now Director of Communications and Outreach for Donate Life Northwest.

Elissa Schuler Adair, PhD has 1 post(s) at EngagingPatients.org

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Shifting the Paradigm

Achieving Patient Engagement: No Easy Task

Sandra, a retired teacher with hypertension, has been Dr. Clarke’s patient for 20 years. When she arrives for her annual visit, she is given a clipboard with a paper form that asks her to list all of her medications and fill in her medical history, the same form she filled out last year. Sandra has […]

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Nancy B. Finn, M.Ed. Nancy B. Finn is a journalist, thought leader and patient advocate, focused on patient empowerment and engagement through the deployment of digital communication technology. She is the author of four books, including e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology . She blogs for the Society for Participatory Medicine at e-patients.net, and publishes her own blog. HealthCare Basics. She also is a contributing columnist and reviewer for the Journal of Participatory Medicine, and is a speaker at many national and international forums. Nancy is a member of the Board of Overseers and the patient advocate on the Safety and Quality Committee at Mount Auburn Hospital in Cambridge, MA, and the consumer advocate and member of Beth Israel Deaconess Medical Center Board.. She is also the Secretary and a board member of the Society for Participatory Medicine.

Nancy B. Finn, M.Ed. has 1 post(s) at EngagingPatients.org

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