Category Archives: Patient Empowerment

Patient Empowerment

Danny van Leeuwen Prepares for Another Journey

Editor’s Pre-note: I occasionally look back at posts we published 1 year ago, 2 years ago and so on, as a way to mark and often marvel at the passage of time. Finding that I posted Danny van Leeuwen’s thoughts about his health journey (below) one year ago struck a chord because I recently enjoyed […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Best Wishes to Liz Salmi—An Update

Since her brain surgery in October 2021, Liz Salmi has continued to blog and tweet about her recovery. The news is good, and as always, Liz’s reporting is honest, informative and inspiring. She’s been blogging on her website, thelizarmy.com, where she recently reflected on the question, What is harder: starting something new, or returning to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Best Wishes to Liz Salmi

I featured an article by Liz Salmi on this blog just two weeks ago and  want to pass along some personal news she recently shared online. Routine monitoring has revealed that her brain cancer, in remission for the past 12 years, is again active, and she is preparing to have surgery in the next few […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

My Journey Toward Best Health

Editor’s Note: In this episode of his podcast, Danny van Leeuwen interviews himself in the guise of “Health Hats,” the moniker Danny has used for many years. Danny is always inspiring, whether interviewing others for the podcast or engaging himself in sincere reflection about what’s most important now. This episode reads like an update to […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 4 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Medical Trauma Leads to Advice Relevant for All

In a recent essay for the BMJ, Brenda Denzler issues clear, concise advice for clinicians on how to approach patients in ways that will encourage and enable them to engage in their care. Remarkable not only for her flawless writing, Denzler issues her advice in the context of medical trauma, on behalf of patients who, […]



Brenda Denzler Brenda Denzler is a writer and editor living in North Carolina. She holds a doctorate degree from Duke University and worked as an editor at UNC-Chapel Hill prior to being diagnosed with inflammatory breast cancer in 2009. She became a cancer survivor on the day she was diagnosed.

Brenda Denzler has 4 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

On November 2, Patients Gain New Access to Personal Health Information

Editor’s note: After this post was published, the Office of the National Coordinator for Health IT released an Interim Rule extending compliance dates from November 2, 2020, to April 5, 2021. Click here for the announcement and here to stay abreast of further news about the Final Rule. With federal legislation that goes into effect […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Congratulations to Danny van Leeuwen, Podcaster and More

“Empowering people as they travel together toward best health” is how Danny van Leeuwen describes his mission, which he pursues through many channels: representing the patient/caregiver voice on task forces for various groups, including the federal government; speaking to audiences across the healthcare landscape; as well as blogging and, most recently, podcasting about managing healthcare […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Hostage Bargaining Syndrome Happens in Healthcare, Too

“Hostage” is an unusual, perhaps startling, word in a health care context.” 1(p1375) The word “hostage” caught my attention as I quickly scanned Twitter or some other message feed on my computer. I don’t recall exactly what I was doing at the time, but I stopped and quickly clicked my way to “When Patients and Their […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 165 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Engagement Begins With Empowerment

I recently attended a lecture by a high school English teacher on the topic of empowerment. She shared the results of an experiment she had done in her classroom where she tried to improve her students’ care and storage of notebook computers used during class. She described engaging her students by sharing with them how […]

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Janette Bisbee, MSN, RN-BC, NHA Janette Bisbee is the education/project manager for The Hospital & Healthsystem Association of Pennsylvania’s (HAP) Hospital Improvement Innovation Network (HIIN). Janette leads person and family engagement efforts at HAP, assisting member hospitals to operationalize person-and-family-centered care in their organizations. Janette has been a registered nurse for 25 years, and prior to joining HAP, spent the majority of her career in the field of long-term care. In addition to being an RN, Janette is a board certified gerontological nurse, and holds a Pennsylvania Nursing Home Administrator license.

Janette Bisbee, MSN, RN-BC, NHA has 1 post(s) at EngagingPatients.org