Tag Archives: health hats

Patient Engagement

On a Slippery Slope to Co-generating Clinical Notes

In a conversation with Danny van Leeuwen, Peter Elias, M.D., describes what I would call a “slippery slope” experience that took him from traditional to highly engaged practice 20+ years ago. Inspired by a question from a patient’s wife and a suggestion from a colleague, Elias developed a process for immediately sharing clinical notes with […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 164 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Danny van Leeuwen Prepares for Another Journey

Editor’s Pre-note: I occasionally look back at posts we published 1 year ago, 2 years ago and so on, as a way to mark and often marvel at the passage of time. Finding that I posted Danny van Leeuwen’s thoughts about his health journey (below) one year ago struck a chord because I recently enjoyed […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 164 post(s) at EngagingPatients.org

Check out my: Twitter


Community Engagement

Singing Three-Part Harmony

Danny van Leeuwen, whose “Health Hats” blog and podcast are often featured here, embodies engagement. In the intro to his latest podcast, he emphasizes the richness of patient engagement; done right, it pervades an organization at all levels: Patients engaged in governance, design, operations, and learning about medical care delivery, policy, research, technology, and business. […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 164 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

My Journey Toward Best Health

Editor’s Note: In this episode of his podcast, Danny van Leeuwen interviews himself in the guise of “Health Hats,” the moniker Danny has used for many years. Danny is always inspiring, whether interviewing others for the podcast or engaging himself in sincere reflection about what’s most important now. This episode reads like an update to […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 4 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Trust in Healthcare During the Pandemic

Over the next few weeks, Engaging Patients will highlight podcasts and articles about how trust is involved when we — patients, clinicians, students and others — engage in healthcare. I didn’t go looking for a theme; rather, it presented itself through social media and email notifications. It appears that many people have been thinking about […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 164 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Empowerment

Congratulations to Danny van Leeuwen, Podcaster and More

“Empowering people as they travel together toward best health” is how Danny van Leeuwen describes his mission, which he pursues through many channels: representing the patient/caregiver voice on task forces for various groups, including the federal government; speaking to audiences across the healthcare landscape; as well as blogging and, most recently, podcasting about managing healthcare […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 164 post(s) at EngagingPatients.org

Check out my: Twitter


Personal Health Journey

Engaged in My Health Journey – An Experiment of One

Editor’s Note: On his personal blog, Health Hats, Danny van Leeuwen reports on the 10th annual Healthcare Literacy in Research Conference, held in Washington, D.C., October 21–23. Danny attended as a PCORI Ambassador. Although he didn’t find exactly what he went looking for — “co-produced research (researcher and patient partners) about lay people, professionals, and communities understanding each other to […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 4 post(s) at EngagingPatients.org

Check out my: Twitter