Category Archives: Shifting the Paradigm

Shifting the Paradigm

Engaging Patients as Peer Reviewers for Research Publications

In an article recently published in BMJ Health & Care Informatics (open access), Liz Salmi and Charlotte Blease provide guidance for patients and other “novices” serving as peer reviewers of research manuscripts submitted for publication. Patients and other lay people can contribute distinct perspectives that have been missing in the review process until recently. But […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

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Shifting the Paradigm

Encore Presentation: Engaged Patients Are the New Paradigm

Editor’s Note: This week, we revisit a post written by “e-Patient” Dave deBronkart, whose thoughts are always evolving. In an article published in July in the Beryl Institute’s Patient Experience Journal, deBronkart continued to develop ideas that he explored for Engaging Patients in April: the pace of progress toward engagement and the kind of change that […]

Shifting the Paradigm

New Enrollment Process Improves Results of Social Needs Program

Editor’s note: Dayton Children’s Hospital was named a finalist for the 2017 Sherman Award for Excellence in Patient Engagement for its Family Resource Connection program. The program helps families address non-medical barriers to good health, such as poor nutrition and unsafe housing, by connecting them with local resources. Jessica Saunders first wrote about this program […]

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Jessica Saunders Jessica Saunders is the director of the Office of Community Health and Engagement Programs at Dayton Children's Hospital. She is responsible for the overall direction and coordination of Dayton Children's child health and wellness efforts in the community, including the Dayton Asthma Alliance and the Family Resource Connection social needs screening and referral program. Jessica also leads the community health needs assessment research, planning and priority area program implementation as well as the community benefit programming of Dayton Children’s. In her tenure at Dayton Children’s, she has coordinated internal, regional, state and national organizations and resources to provide specific programs designed to prevent illness, injury and other harm and improve the health of children. She serves on multiple community boards addressing children’s health and education and is adjunct faculty for both the University of Dayton Department of Political Science Master's in Public Administration and the Wright State University Boonshoft School of Medicine Department of Population & Public Health Sciences.

Jessica Saunders has 3 post(s) at EngagingPatients.org


Shifting the Paradigm

The engaged patient is an anomaly. Let’s fix the paradigm.

For years this blog has been discussing the value and legitimacy of engaging patients as a path to better care. Yet we don’t see a stampede of people—providers or patients—rushing to do it. Why not? I’ve been advocating for participatory medicine for years, more than 500 events in 15 countries. Through that experience, I’ve observed […]

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Dave deBronkart, known on the internet as e-Patient Dave, is author of Let Patients Help: A Patient Engagement Handbook and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007, he became a blogger, health policy advisor and international keynote speaker. An accomplished speaker in his professional life before cancer, he is today one of the best-known spokesmen for the patient engagement movement. Dave is also a co-founder (with his physician) and chair emeritus of the Society for Participatory Medicine. Dave’s TED Talk, “Let Patients Help,” went viral. Volunteers have added subtitles in 26 languages, indicating the global appeal of his message. In 2012 the National Library of Medicine announced that it would capture his blog in its History of Medicine Division, and in 2015 he was the Mayo Clinic’s Visiting Professor in Internal Medicine.

e-Patient Dave deBronkart has 2 post(s) at EngagingPatients.org

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Shifting the Paradigm

Where Health Truly Happens: Addressing Non-Medical Barriers Can Improve Health Outcomes, Engagement

There is a seismic shift taking place in the health care ecosystem with changing roles for everyone. In this transition to value-based and consumer-driven health care, there is a need to recognize the importance of non-medical causes of poor health such as poverty, access to healthy food, job skills, safe neighborhoods and healthy housing. Hospitals […]

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Jessica Saunders Jessica Saunders is the director of the Office of Community Health and Engagement Programs at Dayton Children's Hospital. She is responsible for the overall direction and coordination of Dayton Children's child health and wellness efforts in the community, including the Dayton Asthma Alliance and the Family Resource Connection social needs screening and referral program. Jessica also leads the community health needs assessment research, planning and priority area program implementation as well as the community benefit programming of Dayton Children’s. In her tenure at Dayton Children’s, she has coordinated internal, regional, state and national organizations and resources to provide specific programs designed to prevent illness, injury and other harm and improve the health of children. She serves on multiple community boards addressing children’s health and education and is adjunct faculty for both the University of Dayton Department of Political Science Master's in Public Administration and the Wright State University Boonshoft School of Medicine Department of Population & Public Health Sciences.

Jessica Saunders has 3 post(s) at EngagingPatients.org


Shifting the Paradigm

Advancing Consumer Engagement through Coalition Building

Working in healthcare quality improvement, we often forget how frequently we ask providers to do something to improve the care they are delivering. Providers want to do what’s right and offer the best care possible for their patients but juggling the day-the-day demands of the job and also participating in various quality improvement initiatives can […]

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Anne Elwell Anne Elwell, RN, MPH has 25 years of extensive experience and proven success in healthcare quality improvement and patient safety with a focus on patient-centered care. Her area of professional specialization is in forming collaborations with leaders of hospitals, nursing homes, home care agencies, physician practices, and other health care and community providers to improve communications and processes for patient transitions between health care settings. Ms. Elwell was instrumental in starting the CT Partners for Health, a group of more than 40 stakeholders in the healthcare industry, and serves as the President of its Board of Directors.

Anne Elwell has 1 post(s) at EngagingPatients.org

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Shifting the Paradigm

The Evolution of Patient Expectations: Two Lessons from the Past

Editor’s Note: In this week’s post, Lisa Sams discusses the evolution of patient expectations and engagement and poses questions about using lessons learned to accelerate change. We encourage your feedback and responses to these questions. Please feel free to share in the comments section following the post. “Our Patients Expected, Better . . .” He […]

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Lisa Sams, MSN, RNC Lisa Sams, MSN, RN, is founder and president of Clinical Linkages. Clinical Linkages provides services and resources to health care organizations that result in safer, more effective patient care using the principles of Evidence-Based Practice (EBP). Building teams and improving patient outcomes are the heart of Ms. Sams' work. She has more than 30 years of nursing experience in academic centers and community hospitals.

Lisa Sams, MSN, RNC has 6 post(s) at EngagingPatients.org

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Shifting the Paradigm

Achieving Patient Engagement: No Easy Task

Sandra, a retired teacher with hypertension, has been Dr. Clarke’s patient for 20 years. When she arrives for her annual visit, she is given a clipboard with a paper form that asks her to list all of her medications and fill in her medical history, the same form she filled out last year. Sandra has […]

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Nancy B. Finn, M.Ed. Nancy B. Finn is a journalist, thought leader and patient advocate, focused on patient empowerment and engagement through the deployment of digital communication technology. She is the author of four books, including e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology . She blogs for the Society for Participatory Medicine at e-patients.net, and publishes her own blog. HealthCare Basics. She also is a contributing columnist and reviewer for the Journal of Participatory Medicine, and is a speaker at many national and international forums. Nancy is a member of the Board of Overseers and the patient advocate on the Safety and Quality Committee at Mount Auburn Hospital in Cambridge, MA, and the consumer advocate and member of Beth Israel Deaconess Medical Center Board.. She is also the Secretary and a board member of the Society for Participatory Medicine.

Nancy B. Finn, M.Ed. has 1 post(s) at EngagingPatients.org

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Shifting the Paradigm

What is More Patient-Centered than Asking Patients, “What Matters to You?”

As healthcare providers recognize the essential need to engage patients and to understand what is important to them in their health and healthcare delivery, there is need for a paradigm shift in the focus of “what’s the matter?” to “what matters to you?,” a concept put forward by Maureen Bisognano, President of the Institute for […]

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Pamela Greenhouse, VP, Clinical Operations, Wellbridge Health Pamela has 25+ years of leadership experience in healthcare operations, spanning the continuum of care (ambulatory, acute, rehabilitation, home care and long-term care). She joined Wellbridge Health, Inc. (wellbridgehealth.com) in 2016 as Vice-President, Clinical Operations. Wellbridge Health is a care management solutions company, the goal of which is to reduce hospital re-admissions and avoidable ER visits through integrated methods of tele-monitoring and health coaching by social workers and nurses. Ms. Greenhouse has co-authored over 30 papers in peer-reviewed scholarly journals with a focus on improving care delivery, patient centered care, patient engagement, and experienced based design. She has spoken nationally and internationally on these topics, as well. She holds an M.B.A. in Organizational Behavior.

Pamela Greenhouse, VP, Clinical Operations, Wellbridge Health has 11 post(s) at EngagingPatients.org

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