Tag Archives: OpenNotes

Patient Engagement

On a Slippery Slope to Co-generating Clinical Notes

In a conversation with Danny van Leeuwen, Peter Elias, M.D., describes what I would call a “slippery slope” experience that took him from traditional to highly engaged practice 20+ years ago. Inspired by a question from a patient’s wife and a suggestion from a colleague, Elias developed a process for immediately sharing clinical notes with […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Communication

Physician Engages Patients with OpenNotes, Social Media and Style

Tommy Korn, M.D., an ophthalmologist in San Diego, recently came to my attention through a tweet from OpenNotes (@myopennotes): We love to see examples of clinicians doing #opennotes well! Check out how @TommyKornMD handles note sharing! Clear, affirming, engaging and patient-centered. The tweet links to Dr. Korn’s LinkedIn page, where he offers a sample (and […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Safety

New Framework for Patient-Reported Misdiagnosis Taps the Experts

A new framework developed by Boston-based researchers categorizes patient-reported problems in a way that can be used by health care providers and organizations to better understand errors in diagnoses that are unique to the ambulatory setting, where the majority of missed or delayed diagnoses occur. Recognizing that patients and family caregivers have a unique perspective […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Safety

Accessing Open Notes to Improve Patient Safety and Reduce Disparities

Editor’s note: This article was first published in Patient Safety Beat, newsletter of the Betsy Lehman Center. New, more comprehensive research confirms earlier findings that patients who access clinical notes of ambulatory care visits – “open notes” – often spot errors in their electronic health records. And there are indications from additional research that people […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Accessing Clinical Notes to Improve Patient Safety and Reduce Disparities

Editor’s Note:  OpenNotes has grown from a pilot program involving 20,000 patients in 2010 to an evidence-based approach that offered direct access to clinical visit notes to more than 40 million patients in the United States and Canada in 2019. The program, which is headquartered at Beth Israel Deaconess Medical Center in Boston, describes itself […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Electronic Health Records, Uncategorized

Portals from the Patient’s Point of View

A few weeks ago, I reported on a national survey that measured patient use of internet portals that give patients access to their electronic medical records. I also reflected on my own experience with online access to personal health information. Recently, OpenNotes, a movement that advocates and facilities patient access to their clinicians’ visit notes,* […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Helping Patients and Doctors Understand the Value of OpenNotes

To say “I had a few questions” after learning I had a brain tumor is an understatement. Born on the cusp between Generation X and the Millennials, my instinctual response as a patient—after posting a hospital selfie to Instagram, of course—is to Google every new medical term I encounter. For the most part, I find […]

Patient and Family Advisory Councils

Patient and Family Advisory Councils Advocate for OpenNotes

Before I joined OpenNotes, I worked at Health Care For All, one of the country’s leading consumer healthcare advocacy non-profits. I was part of a team, which included volunteers, that successfully advocated for a law requiring all Massachusetts hospitals to establish Patient and Family Advisory Councils (or PFACs). Such councils exist in thousands of U.S. […]

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Deborah W. Wachenheim, MPP Deborah W. Wachenheim, MPP, is the manager of stakeholder engagement for OpenNotes where she works to spread implementation across the country and to involve patients and families in advocating for ready access to notes. Deborah earned a master's degree in public policy from Harvard Kennedy School and has a background in consumer engagement in health care. She led efforts requiring that all Massachusetts hospitals establish Patient and Family Advisory Councils and developed a statewide network to provide technical assistance and resources to PFACs in Massachusetts.

Deborah W. Wachenheim, MPP has 1 post(s) at EngagingPatients.org


Encore Presentation

OpenNotes: A Growing Trend in Transparency

Editor’s Note: Editor’s Note: In seven years, OpenNotes has grown from a pilot program of 20,000 patients at three U.S. health systems to an international movement of more than 16.5 million patients. Last week, Engaging Patients published a post by Macda Gerard, a medical student and OpenNotes research assistant. To add a bit more context, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Participatory Medicine

OpenNotes: Creating a Solid Foundation for Engagement

I’m one of more than 17 million Americans who now have access to the visit notes my doctors write after my appointments with them. Here’s what I want my doctors to know: I’m a good listener – really, I am – but when I read my visit notes, I realize that I miss a lot […]