Tag Archives: OpenNotes

Patient Engagement

Helping Patients and Doctors Understand the Value of OpenNotes

To say “I had a few questions” after learning I had a brain tumor is an understatement. Born on the cusp between Generation X and the Millennials, my instinctual response as a patient—after posting a hospital selfie to Instagram, of course—is to Google every new medical term I encounter. For the most part, I find […]

Patient and Family Advisory Councils

Patient and Family Advisory Councils Advocate for OpenNotes

Before I joined OpenNotes, I worked at Health Care For All, one of the country’s leading consumer healthcare advocacy non-profits. I was part of a team, which included volunteers, that successfully advocated for a law requiring all Massachusetts hospitals to establish Patient and Family Advisory Councils (or PFACs). Such councils exist in thousands of U.S. […]


Deborah W. Wachenheim, MPP Deborah W. Wachenheim, MPP, is the manager of stakeholder engagement for OpenNotes where she works to spread implementation across the country and to involve patients and families in advocating for ready access to notes. Deborah earned a master's degree in public policy from Harvard Kennedy School and has a background in consumer engagement in health care. She led efforts requiring that all Massachusetts hospitals establish Patient and Family Advisory Councils and developed a statewide network to provide technical assistance and resources to PFACs in Massachusetts.

Deborah W. Wachenheim, MPP has 1 post(s) at EngagingPatients.org

Encore Presentation

OpenNotes: A Growing Trend in Transparency

Editor’s Note: Editor’s Note: In seven years, OpenNotes has grown from a pilot program of 20,000 patients at three U.S. health systems to an international movement of more than 16.5 million patients. Last week, Engaging Patients published a post by Macda Gerard, a medical student and OpenNotes research assistant. To add a bit more context, […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 66 post(s) at EngagingPatients.org

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Participatory Medicine

OpenNotes: Creating a Solid Foundation for Engagement

I’m one of more than 17 million Americans who now have access to the visit notes my doctors write after my appointments with them. Here’s what I want my doctors to know: I’m a good listener – really, I am – but when I read my visit notes, I realize that I miss a lot […]

Paths to Improved Patient Engagement

Transparency: A Powerful Approach to Fostering Trust Among Patients

The other day, I simply couldn’t convince my patient, a 56-year-old executive vice president with known heart disease and high cholesterol, to take a potentially life-saving cholesterol-lowering drug, or “statin.” He mentioned that his prior doctor, whom he trusted, warned him of the harmful and irreversible effects statins have on muscle tissue. No matter how […]


John N. Mafi, MD, MPH John N. Mafi, MD, MPH is an assistant professor of medicine at the David Geffen School of Medicine at UCLA where he also practices and teaches general internal medicine and primary care. He also is an affiliated adjunct natural scientist at RAND Corporation. He is interested in innovations and policies that can improve the quality and lower costs of care. In particular, he is interested in evaluating factors related to low value care as well as assessing the impact of transparency on patient engagement and the quality of care.

John N. Mafi, MD, MPH has 1 post(s) at EngagingPatients.org

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Now Center Stage:

Award Winning Efforts in Patient Engagement Drive Better, Safer Care

When we talk about patient and family engagement, it’s tough not to consider the barriers. Problems with health literacy, for example, may hinder patients’ understanding of diagnoses, medication regimens, and care plans. Fear of being considered “difficult” may prevent patients from speaking up. Providers may not have to tools, training, or time to actively engage […]