A new framework developed by Boston-based researchers categorizes patient-reported problems in a way that can be used by health care providers and organizations to better understand errors in diagnoses that are unique to the ambulatory setting, where the majority of missed or delayed diagnoses occur. Recognizing that patients and family caregivers have a unique perspective […]
Editor’s Note: This post, which describes Sarah Kiehl’s experience with maternal sepsis, first appeared in ImproveDx, digital newsletter of the Society to Improve Diagnosis in Medicine (SIDM). Kiehl is a patient partner in SIDM’s Patients Improving Research in Diagnosis (PAIRED) project. She has also shared her story on the website of the Sepsis Alliance, the organization that launched […]
Editor’s note: This post brings patients into the diagnostic process as informed, engaged partners by explaining that diagnosis is a complex process, not a simple answer. Written by an experienced patient advocate, this column originally appeared in the “Dx IQ” series on the website of the Society to Improve Diagnosis in Medicine. SIDM works in […]
Recent efforts to understand and mitigate diagnostic error fully acknowledge the importance of patients and families as sources of information and feedback. While recognition is progress, patients and families are still not routinely consulted in diagnostic error research or in practice for the information that they alone can offer. A study published in Health Affairs represents […]