Tag Archives: patient and family advisory councils

Patient and Family Engagement

PFACs Adjust to Pandemic Disruption and Find Some Silver Linings

A large majority of patient and family advisory councils (PFACs) in 166 pediatric hospitals across the country made necessary adjustments at the beginning of the pandemic, continued meeting on a regular basis and maintained or surpassed pre-pandemic levels of participation. These results come from a survey performed by researchers from the Institute for Patient- and […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

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Patient and Family Advisory Councils

Patient and Family Advisory Councils Advocate for OpenNotes

Before I joined OpenNotes, I worked at Health Care For All, one of the country’s leading consumer healthcare advocacy non-profits. I was part of a team, which included volunteers, that successfully advocated for a law requiring all Massachusetts hospitals to establish Patient and Family Advisory Councils (or PFACs). Such councils exist in thousands of U.S. […]


Deborah W. Wachenheim, MPP Deborah W. Wachenheim, MPP, is the manager of stakeholder engagement for OpenNotes where she works to spread implementation across the country and to involve patients and families in advocating for ready access to notes. Deborah earned a master's degree in public policy from Harvard Kennedy School and has a background in consumer engagement in health care. She led efforts requiring that all Massachusetts hospitals establish Patient and Family Advisory Councils and developed a statewide network to provide technical assistance and resources to PFACs in Massachusetts.

Deborah W. Wachenheim, MPP has 1 post(s) at EngagingPatients.org

Paths to Patient-Centered Care

Patient and Family Advisory Councils: Making Inroads in Hospitals

Two years ago, the percentage of Patient and Family Advisory Councils (PFACs) in hospitals was estimated at 40 percent by the Agency for Healthcare Research and Quality and confirmed by the Partnership For Patients. According to the Beryl Institute, that figure has risen to 55 percent as the case for PFACs gains momentum giving patients […]


Barbara Lewis, MBA Barbara Lewis, MBA is the Managing Editor of DocCom, a non-profit on-line communication skills learning system launched in 2005 to help medical students become better communicators. Today, the fastest growing segment of DocCom’s subscribers is residency programs. Translated into three languages, DocCom (www.DocCom.org) has subscribers in eight countries. Barbara is a former journalist and marketing consultant.

Barbara Lewis, MBA has 4 post(s) at EngagingPatients.org

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Patient and Family Advisory Councils

Patient-Centered Care: Giving Voice to Patients and Families

The idea of patient-centered care resonates well with me, and other nurses who have long valued the central role of patients and families in the delivery of care. Some of my most memorable pediatric patients had miraculous recoveries, and the one aspect that all of these patients had in common was an engaging family support […]


Arundi Venkayya Arundi Venkayya is marketing and public relations manager for Taylor Healthcare, curator of EngagingPatients.org and administrator of the Sherman Award program which recognizes excellence in patient and family engagement. Before joining Taylor Healthcare, Arundi was an editor at the Dayton Daily News and served as public relations manager for Dayton Children's Hospital.

Arundi Venkayya has 9 post(s) at EngagingPatients.org

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