Category Archives: Patient Engagement

Patient Engagement

CARe Forum models how to talk about medical harm with patients and providers

Communication and resolution programs can help organizations meet the informational and emotional needs of patients and families, as well as clinicians and staff members, after an adverse or unexpected event in medical care. Advocates of the CARe — or Communication, Apology and Resolution — model held an annual forum earlier this month to highlight the […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

On a Slippery Slope to Co-generating Clinical Notes

In a conversation with Danny van Leeuwen, Peter Elias, M.D., describes what I would call a “slippery slope” experience that took him from traditional to highly engaged practice 20+ years ago. Inspired by a question from a patient’s wife and a suggestion from a colleague, Elias developed a process for immediately sharing clinical notes with […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

“But I have to have a number.”

Lisa Rosenbaum’s recent three-part series in the New England Journal of Medicine, “The Quality Movement,”is a detailed, nuanced and deeply reported analysis of efforts to use quantifiable measures to drive quality improvement. My over-simplified take on her bottom line is that the effort has largely failed. The component parts of high-quality care are hard to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Integrating Patient-Generated Health Data into EHRs – New Guidance from AHRQ

Being able to contribute patient-generated health data to one’s own personal health history has been the holy grail for many engaged patients. Knowing that ongoing data can support healthy habits and treatment of many conditions inspires many patients and family caregivers to keep records manually or, increasingly, with the aid of user-friendly devices. It may […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Engaging Assisted Living Residents and Families in Planning and Decision-Making

A 25-member panel of experts in long-term care has written a report in which they propose “paving the path to a better future of assisted living.” The report, The Imperative to Reimagine Assisted Living, was published in the Journal of the American Medical Directors Association in February and is available through open access. Having been […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Engaging Through Design

When Paul Farmer, M.D., died unexpectedly last month, Michael Murphy initially stood out among the people memorializing him because Murphy is an architect, not a physician. But Murphy was an important collaborator in Farmer’s Partners in Health, a non-profit organization that provides health care services to people in Rwanda, Haiti, Peru and many other communities […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Engaging with Older Patients for Optimal Diagnosis

In a JAMA viewpoint essay (open access), Drs. Christine Cassel and Terry Fulmer describe circumstances clinicians should consider when working with older patients, especially when diagnosing new conditions. Many of their recommendations involve specialized knowledge, such as expressions of disease that change in individuals over 65. But overall they urge clinicians to tune in, pay […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Massachusetts Looks to Doula Support Services to Improve Maternal Care and Birth Outcomes

Doula support, which seeks to help individuals and families during pregnancy and childbirth, is gaining new traction in Massachusetts as one way to help address racial inequities in pregnancy care and birth outcomes, invest in community-based care and meet the cost control and value improvement goals of accountable care organizations (ACO). The state’s Medicaid program, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Let’s Talk About What Constitutes an “Emergency”

The news reports are telling us lately that people are calling 911 when its not an emergency and tying up the emergency response teams who are needed for “real” emergencies. But what is an emergency?  Don’t assume people know this. It is part of the disconnect between patient care and patient safety. In 2010 I […]

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Ilene Corina is president and founder of the Pulse Center for Patient Safety Education and Advocacy. Corina has served on the board of organizations including The Joint Commission and the National Patient Safety Foundation and has won numerous awards for her work as an educator and advocate. Corina is the author of "Rants of a Patient Safety Advocate: Stories from the Bedside." Learn more about Corina and her work at www.icorina.com.

Ilene Corina, BCPA has 6 post(s) at EngagingPatients.org


Patient Engagement

We’re pushing healthcare workers to the limit. What can patients do to help?

It’s clear that many healthcare workers are feeling worn out, burned out, anxious and even angry. There is good reporting about the problem, which includes a critical shortage of nurses, and some organizations offer programs designed to help address the symptoms. But in the short term, there is very little that can be done to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 176 post(s) at EngagingPatients.org

Check out my: Twitter