Category Archives: Patient Engagement

Patient Engagement

‘What matters to you?’ — A Question of Engagement

Asking patients “What matters to you?” instead of “What is the matter?” is a shift of emphasis I first heard advocated years ago at one of the Institute for Healthcare Improvement’s National Forum conferences. To learn and honor each patient’s preferences should by now be a natural part of delivering care, but it remains a […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

TakeCHARGE of Your Health Care With These Five Steps

I stood next to “Laura’s” bed just before her surgery as the nurse asked her for her list of medications and allergies. Laura shot back at the nurse, “Don’t you have it? I already gave the same list to everyone!” The nurse explained that the question is a safety precaution, meant to ensure that everyone […]

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Ilene Corina is president and founder of the Pulse Center for Patient Safety Education and Advocacy. Corina has served on the board of organizations including The Joint Commission and the National Patient Safety Foundation and has won numerous awards for her work as an educator and advocate. Corina is the author of "Rants of a Patient Safety Advocate: Stories from the Bedside." Learn more about Corina and her work at www.icorina.com.

Ilene Corina, BCPA has 4 post(s) at EngagingPatients.org


Patient Engagement

To Counter Misinformation, Begin With Humility and Build Trust

With many people turning to social media networks for information during an urgent and often confusing public health crisis, it’s more important than ever that patients feel comfortable talking openly and honestly with reliable health experts especially when they have questions or need help. And it’s very helpful if clinicians have skills and strategies for […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Trust in Healthcare During the Pandemic

Over the next few weeks, Engaging Patients will highlight podcasts and articles about how trust is involved when we — patients, clinicians, students and others — engage in healthcare. I didn’t go looking for a theme; rather, it presented itself through social media and email notifications. It appears that many people have been thinking about […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Ready for the New Year?

Editor’s Note: Looking back over 2020, it’s easy to see that the SARS-CoV-2 pandemic has touched nearly every aspect of daily life around the world, and in heath care the impact has been profound. What a year! In addition to the extent and depth of change the pandemic has triggered, I’m struck by the pandemic’s […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Accessing Clinical Notes to Improve Patient Safety and Reduce Disparities

Editor’s Note:  OpenNotes has grown from a pilot program involving 20,000 patients in 2010 to an evidence-based approach that offered direct access to clinical visit notes to more than 40 million patients in the United States and Canada in 2019. The program, which is headquartered at Beth Israel Deaconess Medical Center in Boston, describes itself […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Disengaging and Reengaging in Healthcare

Patient engagement has taken a hit from the novel coronavirus outbreak. Since early March when “lockdown” upended normal life across the country, many patients have disengaged from healthcare—missed care they needed either because appointments had been cancelled or because they felt the risk of catching COVID-19 outweighed the risk of delayed care. Even highly activated […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

‘Take Charge’ Campaign Begins With Advance Directives

Editor’s Note: Ilene Corina and her colleagues at the Pulse Center for Patient Safety Education & Advocacy are leading a 5-month-long campaign to encourage everyone to become better informed and more engaged in their healthcare. Between now and August 2020, the campaign, “Take Charge: 5 Steps to Safer Health Care,” will focus on one action per […]

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Ilene Corina is president and founder of the Pulse Center for Patient Safety Education and Advocacy. Corina has served on the board of organizations including The Joint Commission and the National Patient Safety Foundation and has won numerous awards for her work as an educator and advocate. Corina is the author of "Rants of a Patient Safety Advocate: Stories from the Bedside." Learn more about Corina and her work at www.icorina.com.

Ilene Corina, BCPA has 4 post(s) at EngagingPatients.org


Patient Engagement

Patients and Caregivers as ‘User Entrepreneurs’

No one knows better than patients and their caregivers which solutions work best for their particular needs. Often highly circumstantial, those needs can be difficult for commercial companies to anticipate or fully understand. Some patients and caregivers take matters into their own hands and innovate to solve real problems in real time by developing, for […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

Patient Engagement, Consumerism and Health Plan Design

Editor’s note: We offer this Encore Presentation about the unintended effects of health plan design as the 2019 Open Enrollment period — November 1 to December 15 — for plans under the Affordable Care Act approaches. Medicare offers open enrollment from October 15 to December 7. Attempts to control healthcare costs, to link cost to value, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter