Category Archives: Encore Presentation

Encore Presentation

KLAS Summit Identifies Seven Principles for Patient Engagement

Last fall, healthcare IT leaders came together in Salt Lake City, Utah, to discuss the future of patient engagement. This Patient Engagement Keystone Summit sought to accomplish a few things: Define patient engagement and establish a framework. Establish a common, patient-centric language. Align health information technology (HIT) capabilities and expectations. Explore patient engagement outcome measurements. […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 44 post(s) at EngagingPatients.org

Check out my: Twitter


Encore Presentation

Cost of Care: Engaging in Difficult Conversations

Editor’s note: In this Encore Presentation, Wendy Nickel describes how important it is to discuss the cost of care. Financial considerations are patient engagement discussions, too, and typically not easy for patients, families, or providers. On January 10th this year, my 12-year-old son experienced a concussion during basketball practice. I wasn’t there, but my husband was and […]

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Wendy Nickel Wendy Nickel is director of the Centers for Quality and Patient Partnership in Healthcare at the American College of Physicians. She has over 20 years of experience in healthcare, focused on patient advocacy and improving quality, safety and the experience of care.

Wendy K. Nickel, MPH has 3 post(s) at EngagingPatients.org


Encore Presentation

Engaged in My Health Journey – An Experiment of One

Editor’s Note: Danny van Leeuwen is a remarkably prolific blogger, and I look forward to reading all his posts. In a recent post, he expressed frustration with medication lists that defy correction and constantly default to old or incorrect information despite his attempts and the sincere efforts of his providers to make them right. My […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 3 post(s) at EngagingPatients.org

Check out my: Twitter


Encore Presentation

OpenNotes: A Growing Trend in Transparency

Editor’s Note: Editor’s Note: In seven years, OpenNotes has grown from a pilot program of 20,000 patients at three U.S. health systems to an international movement of more than 16.5 million patients. Last week, Engaging Patients published a post by Macda Gerard, a medical student and OpenNotes research assistant. To add a bit more context, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 44 post(s) at EngagingPatients.org

Check out my: Twitter