Tag Archives: patient and family voices

Patient and Family Advisory Councils

Patient and Family Advisory Councils Advocate for OpenNotes

Before I joined OpenNotes, I worked at Health Care For All, one of the country’s leading consumer healthcare advocacy non-profits. I was part of a team, which included volunteers, that successfully advocated for a law requiring all Massachusetts hospitals to establish Patient and Family Advisory Councils (or PFACs). Such councils exist in thousands of U.S. […]


Deborah W. Wachenheim, MPP Deborah W. Wachenheim, MPP, is the manager of stakeholder engagement for OpenNotes where she works to spread implementation across the country and to involve patients and families in advocating for ready access to notes. Deborah earned a master's degree in public policy from Harvard Kennedy School and has a background in consumer engagement in health care. She led efforts requiring that all Massachusetts hospitals establish Patient and Family Advisory Councils and developed a statewide network to provide technical assistance and resources to PFACs in Massachusetts.

Deborah W. Wachenheim, MPP has 1 post(s) at EngagingPatients.org

2016 JQS Award Winner

CHOP’s Winning Strategy includes Patient and Family Voices in Total Project Design

Editor’s Note: The Children’s Hospital of Philadelphia (CHOP) Patient and Family Engagement Team and Outpatient Services Leadership was named 2016 John Q. Sherman Award for Excellence in Patient Engagement winner for their Buerger Center project that included patient and family voices in the total project design: Start to finish. CHOP paid special attention to the […]


Amy Kratchman Amy Kratchman has been working with clinicians and researchers since 2008 as a family representative. She is the mother of three children with special healthcare needs. As a Family Consultant at The Children’s Hospital of Philadelphia (CHOP), Amy co-leads numerous Family-Centered Care initiatives. She collaborates with senior hospital leaders and staff to ensure that the institution’s operating plan and programmatic goals are responsive to the needs of children and families. Amy co-leads Family Partners, an innovative program developed and implemented at CHOP to maximize the meaningful engagement of families in all aspects of the pediatric healthcare delivery system. Engaging parents and youth in research is a major focus of this work. Amy is a co-investigator on a PCORI Pilot grant and co-investigator and family lead on the PCORI-funded National Pediatric Learning Health System (PEDSnet). She is the Family Advisor for the Developmental Behavioral Pediatric Research Network and the CHOP Autism Treatment Network. She recently served on PCORI’s Patient Engagement Advisory Panel. She serves in various capacities on national boards and advisory councils to advance family engagement in pediatric health outcomes research. She also is a member of CHOP’s Patient and Family Care Council (PFAC) and co-chairs special interest PFACs.

Amy Kratchman has 1 post(s) at EngagingPatients.org