Category Archives: Patient and Family Engagement

Patient and Family Engagement

Engaging With a Complex Healthcare System

Editor’s Note: The complexity of the American healthcare system is difficult for patients, families and consumers to understand. It also frustrates clinicians and increases the risk that something will go wrong in the course of care. For those in need of care or simply trying to manage routine needs, such as ongoing medications, the system […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 22 post(s) at EngagingPatients.org

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Patient and Family Engagement

Patients and Caregivers Engage Without Calling It ‘Patient Engagement’

In 2013, before I’d ever heard of “patient engagement,”  I spent many days at doctor’s offices, hospitals, chemo infusion suites, in ambulances, and with visiting nurses in our home. My first husband, Ahmad, had Stage IV bladder cancer, and we spent a draining 11 months in a desperate quest to save his life. I observed […]

Patient and Family Engagement

The Challenge of Accidental Engagement

Watching coverage of rescues following tropical storm Harvey reinforced my growing awareness of a national problem. And I’m not thinking about storms and flooding (although the calamity continues). I’m increasingly aware of a large population of individuals and—if they’re lucky—their family caregivers who are engaged in challenging home care situations, often hidden, often without training or […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 22 post(s) at EngagingPatients.org

Check out my: Twitter


Patient and Family Engagement

Patient and Family Reporting: New Knowledge, New Advances

In just a few weeks, at the National Patient Safety Foundation (NPSF) Patient Safety Congress in Orlando, we will learn which individual or organization is to receive this year’s Sherman Award for Excellence in Patient Engagement. The NPSF Lucian Leape Institute began its collaboration with Engagingpatients.org to confer this award in the wake of a […]

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Tejal K. Gandhi, MD, MPH, CPPS Tejal K. Gandhi, MD, MPH, CPPS, is chief clinical and safety officer at the Institute for Healthcare Improvement (IHI). Previously, she was president and CEO of the National Patient Safety Foundation, which merged with IHI in May 2017. An internist and associate professor of medicine at Harvard Medical School, Gandhi was formerly the chief quality and safety officer at Partners Healthcare in Boston, Massachusetts. In 2009 she received the John M. Eisenberg Patient Safety and Quality Award for her contributions to understanding the epidemiology and possible prevention strategies for medical errors in the outpatient setting.

Tejal K. Gandhi, MD, MPH, CPPS has 8 post(s) at EngagingPatients.org

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Patient and Family Engagement

Engaging Patients in Safety: Naughty or Nice?

The process of engaging patients in making care safer should be seen through a Santa Claus lens. It can be naughty or nice, depending not on good intentions but on the specifics of the intervention. Seeking True Empowerment The key question is whether patients are being truly empowered or whether providers are passing the buck, […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 15 post(s) at EngagingPatients.org

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Patient and Family Engagement

Empowering Patients and Families to Participate in Care

No one ever expects to be given the challenge of having multiple medical needs. It is time consuming, exhausting, and gives insight in to a world that most of us would rather not have: that of the U.S. healthcare system. And not just a system, but a very fragmented and broken system which patients and […]

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Chrissie Blackburn, MHA Chrissie Blackburn is parent of a child with medical complexities and a passionate advocate for encouraging dialogue between patients, families, and their caregivers. Today, she is Principal Advisor, Patient and Family Engagement at Cleveland's University Hospitals Case Medical Center, and travels widely to share her story and advance cultural enhancement within the healthcare system.

Chrissie Blackburn, MHA has 1 post(s) at EngagingPatients.org

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Patient and Family Engagement

Family Engagement: Combatting Low Literacy, Driving Better Patient Outcomes

This week, I was once again reminded of the prevalence and impact of low health literacy. An article on WashingtonPost.com penned by CVS Caremark pointed to these statistics from the National Institutes of Health (NIH) that looked at the elder segment of the population, age 65 and older: 2/3 of older people are unable to […]

Patient and Family Engagement

The Most Difficult Challenge: Engaging Patients and Families Following Medical Harm

The numbers are staggering, and the emotional fallout has yet to be even remotely addressed. As healthcare systems seek to devise proactive measures aimed at curtailing, and hopefully eliminating, preventable patient harm resulting from medical care, the fact remains — even in the safest of systems, things can, and often do, go wrong. The iconic […]

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Winifred N. Tobin Winifred N. Tobin (wtobin@mitss.org) joined MITSS in the spring of 2003. Since that time, she has been responsible for strategic communications surrounding all of the organization's activities. Her areas of specific interest include emotional support for anyone involved in an adverse event; patient safety and quality; patient engagement; health literacy; and, safer healthcare for diverse populations. She co-authored Engaging Minorities in Safer Healthcare in 2011. Winnie has served on numerous committees representing the patient’s voice, and, in particular, that of the patient who has suffered medical harm. Currently, she serves as on the Consumer Advisory Group to the Massachusetts eHealth Collaborative and is a member of MACRMI. She holds a BSBA degree in marketing from the Sawyer School of Management at Suffolk University.

Winifred N. Tobin has 2 post(s) at EngagingPatients.org

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Patient and Family Engagement

In Connecticut, Better Health is Everyone’s Responsibility

The most powerful message in patient engagement comes down to a single word: “empowerment.” Last week more than 500 people convened for the “Better Health: Everyone’s Responsibility,” a full-day educational event at the Connecticut Convention Center in Hartford, hosted by the CT Partners for Health. The conference was aimed at empowering consumers to proactively manage […]

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Jim Rattray Jim Rattray is Executive Vice President of Bennett Group in Boston, an award-winning full-service integrated marketing, communications and advertising agency. With decades of experience as a journalist and professional communicator, he has been recognized for his work with numerous national and regional awards and has spoken to marketing and PR audiences around the country on using new tools for public relations, marketing and patient engagement. Rattray is a registered Apple Developer and the creator of MyHealth for iPhone.

Jim Rattray has 18 post(s) at EngagingPatients.org

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Patient and Family Engagement

Chronic Disease Management: Rallying Support for the Journey

Chronic diseases exact a huge toll in terms of human and financial impact. According to the CDC, chronic diseases account for $3 of every $4 spent on healthcare — nearly $7,900 for every American with a chronic disease. What’s more, they cause 7 out of every 10 deaths. As a woman who has been relatively […]