Tag Archives: PXJ

Hospital at Home

Canadian Study Focuses on What Patients and Family Caregivers Need and Want

The current issue of the Patient Experience Journal (PXJ) includes a study of perceptions among healthcare providers and the public of the “hospital at home” or HaH model of care. The study was performed in British Columbia, Canada, during the coronavirus pandemic, between September 2020 and January 2021. HaH programs provide hospital-level acute care to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient and Family Engagement

PFACs Adjust to Pandemic Disruption and Find Some Silver Linings

A large majority of patient and family advisory councils (PFACs) in 166 pediatric hospitals across the country made necessary adjustments at the beginning of the pandemic, continued meeting on a regular basis and maintained or surpassed pre-pandemic levels of participation. These results come from a survey performed by researchers from the Institute for Patient- and […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Engagement

We’re pushing healthcare workers to the limit. What can patients do to help?

It’s clear that many healthcare workers are feeling worn out, burned out, anxious and even angry. There is good reporting about the problem, which includes a critical shortage of nurses, and some organizations offer programs designed to help address the symptoms. But in the short term, there is very little that can be done to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Experience

Becoming an Engaged Patient—Lessons From a Student With HIV

The latest issue of the Beryl Institute’s Patient Experience Journal includes a patient narrative about coping with an unexpected diagnosis of HIV and challenges associated with accessing care. Beyond the author’s particular circumstances, which include being a university student from overseas, his story shows how a patient can grow through the experience of seeking medical […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Care Partners

New Issue of PXJ Offers Research and Reflections on COVID “No Visit” Policies

The latest issue of the Patient Experience Journal, with 21 articles by authors from around the world, is now available online. PXJ is a peer-reviewed, open-access digital journal published in association with The Beryl Institute. The current issue includes two articles about the effect of restrictive “no visit” policies used by hospitals and other care […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Human Experience

Call for Articles: Human Experience in the Face of COVID-19

The Patient Experience Journal or PXJ invites authors to submit manuscripts for a special issue devoted to “sustaining a focus on human experience in the face of COVID-19.” The issue will be published this summer. Articles submitted for the special issue must be received by June 1, 2020. PXJ is an open access, peer-reviewed digital […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Experience

A How-To Guide for Engaging Patients in EHR Implementation

The latest issue of the Patient Experience Journal (PXJ) covers a wide range of topics in articles contributed by authors working in healthcare facilities across the world. While many of the subjects covered are of interest to Engaging Patients readers, one offers an unusual perspective on a notoriously challenging task for provider organizations: implementation of […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Pediatric Medicine

Pediatrics as a Model for Patient Engagement

Editor’s note: This Encore Presentation focuses on programs in pediatric medicine that provide good models for patient and family engagement throughout medicine. The post concludes with a list of five programs recognized as winners or finalists of the Sherman Award for Excellence in Patient Engagement. Nominations for the 2019 Sherman Award will open next month. […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter


Pediatric Medicine

Pediatrics as a Model for Patient Engagement

Children often bring out the best in us. If we allow ourselves to meet them on their level, honor them for who they are, and communicate in whatever way – verbal or nonverbal – seems most effective and appropriate, the experience can be magical. That approach to engaging with others, adjusted appropriately for children and […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 174 post(s) at EngagingPatients.org

Check out my: Twitter