Tag Archives: Cancer

Patient and Family Engagement

Engaging With a Complex Healthcare System

Editor’s Note: The complexity of the American healthcare system is difficult for patients, families and consumers to understand. It also frustrates clinicians and increases the risk that something will go wrong in the course of care. For those in need of care or simply trying to manage routine needs, such as ongoing medications, the system […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Carr lives and works in Lunenburg, Massachusetts.

Susan Carr has 18 post(s) at EngagingPatients.org

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Patient and Family Engagement

Patients and Caregivers Engage Without Calling It ‘Patient Engagement’

In 2013, before I’d ever heard of “patient engagement,”  I spent many days at doctor’s offices, hospitals, chemo infusion suites, in ambulances, and with visiting nurses in our home. My first husband, Ahmad, had Stage IV bladder cancer, and we spent a draining 11 months in a desperate quest to save his life. I observed […]

Shared Decision Making

It’s Time to Truly Share the Chemo Decision with Cancer Patients

You (or a loved one) has cancer, but the latest round of chemotherapy has unfortunately had only a modest impact. While you’re acutely aware of the “wretchedness of life that becomes worn to the nub by [chemotherapy’s] adverse effects,” you’re also a fighter. How do you decide whether to continue with chemo? The answer to […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 15 post(s) at EngagingPatients.org

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