Tag Archives: Cancer

Engaged Patient

The Edge of the Known World, Revisited

Editor’s note: Nearly one year ago, I wrote about Adam Hayden’s experience of long-term survival of glioblastoma – brain cancer – for which he received a prognosis of 15 to 18 months in 2016. “Long term” survival is relative; at six years, Adam is now even farther out on the edge of the “known world” than […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

An Update: Thanksgiving in Canada

Editor’s Note: I’m happy to relay further good news from Bill Gardner. In a recent post, he reports that his latest CT scan showed no evidence of cancer. As described in the post below, Gardner has been receiving immunotherapy known to help a small percentage of patients with  recurrent head and neck cancer. He is […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Thanksgiving in Canada

I hadn’t seen a new post in Bill Gardner’s Cancer Journal since late July and was growing concerned. So, I was relieved and moved by the essay he posted last week, in which he notes Canadian Thanksgiving and supplies some backstory on his recent throat cancer treatment. The news is good, all things considered, and his […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

The Edge of the Known World

Adam Hayden has lived with glioblastoma for more than five years and in that sense is living at the edge of the known world. Only 7% of patients with this form of cancer live as long as Hayden has; he is an N of 1. Most physicians haven’t cared for glioblastoma patients in Hayden’s circumstance; […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Hopeful News from Bill Gardner

I’m happy to report hopeful news from Bill Gardner, whose story I’ve been following and relaying in Engaging Patients since he shared his cancer diagnosis more than a year ago. When I last wrote about Bill’s posts, which appear on the Incidental Economist blog, he had just learned that his throat cancer is incurable. His […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Perspectives

An Engaged Patient Helps Others as He Confronts Bad News

It’s time for an update on Bill Gardner, an engaged patient, psychologist, researcher, educator and writer in Canada who has been chronicling his experience with cancer for about a year. The news is not good. Earlier this month, in a post titled “SHATTERED,” Gardner explained that his cancer has continued to grow despite extensive radiation […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Safety

Engaged and Persistent, Cancer Patient Tracks Down an Error

In his latest post, Bill Gardner describes the shock of discovering that he now has lung cancer, in addition to throat cancer that was diagnosed in July 2020. Gardner has been blogging about the experience of being a cancer patient in 2020, juggling concerns about COVID-19 together with worries and challenges more typical for someone […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Being a Cancer Patient During the COVID-19 Pandemic

Bill Gardner, Ph.D., has been writing for The Incidental Economist (where he is a regular contributor) about his experience as a cancer patient since early July after he received a diagnosis of oropharyngeal squamous cell carcinoma. In addition to telling his own health story, in posts that now number nine, Dr. Gardner reports on the global […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Progress Report From Bill Gardner, Engaged in Radiation Treatment

Readers of this blog and The Incidental Economist blog may be familiar with Bill Gardner, an experienced physician, researcher, educator and writer who is blogging while in cancer treatment. I have been tracking his reports with posts here at Engaging Patients that link to his over at TIE. In a post published earlier this month, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

A Cancer Patient’s Perspective on the Pandemic; Updates From Dr. Bill Gardner

In a post published earlier this month, I mentioned Bill Gardner, Ph.D., as an example of a patient for whom diagnosis had been delayed by effects from the coronavirus pandemic on medical care. I also mentioned that Dr. Gardner, a contributing writer for the Incidental Economist blog, intended to report on his cancer experience in […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter