Tag Archives: Cancer

Engaged Patient

The Edge of the Known World

Adam Hayden has lived with glioblastoma for more than five years and in that sense is living at the edge of the known world. Only 7% of patients with this form of cancer live as long as Hayden has; he is an N of 1. Most physicians haven’t cared for glioblastoma patients in Hayden’s circumstance; […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

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Engaged Patient

Hopeful News from Bill Gardner

I’m happy to report hopeful news from Bill Gardner, whose story I’ve been following and relaying in Engaging Patients since he shared his cancer diagnosis more than a year ago. When I last wrote about Bill’s posts, which appear on the Incidental Economist blog, he had just learned that his throat cancer is incurable. His […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Perspectives

An Engaged Patient Helps Others as He Confronts Bad News

It’s time for an update on Bill Gardner, an engaged patient, psychologist, researcher, educator and writer in Canada who has been chronicling his experience with cancer for about a year. The news is not good. Earlier this month, in a post titled “SHATTERED,” Gardner explained that his cancer has continued to grow despite extensive radiation […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Safety

Engaged and Persistent, Cancer Patient Tracks Down an Error

In his latest post, Bill Gardner describes the shock of discovering that he now has lung cancer, in addition to throat cancer that was diagnosed in July 2020. Gardner has been blogging about the experience of being a cancer patient in 2020, juggling concerns about COVID-19 together with worries and challenges more typical for someone […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Being a Cancer Patient During the COVID-19 Pandemic

Bill Gardner, Ph.D., has been writing for The Incidental Economist (where he is a regular contributor) about his experience as a cancer patient since early July after he received a diagnosis of oropharyngeal squamous cell carcinoma. In addition to telling his own health story, in posts that now number nine, Dr. Gardner reports on the global […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Progress Report From Bill Gardner, Engaged in Radiation Treatment

Readers of this blog and The Incidental Economist blog may be familiar with Bill Gardner, an experienced physician, researcher, educator and writer who is blogging while in cancer treatment. I have been tracking his reports with posts here at Engaging Patients that link to his over at TIE. In a post published earlier this month, […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

A Cancer Patient’s Perspective on the Pandemic; Updates From Dr. Bill Gardner

In a post published earlier this month, I mentioned Bill Gardner, Ph.D., as an example of a patient for whom diagnosis had been delayed by effects from the coronavirus pandemic on medical care. I also mentioned that Dr. Gardner, a contributing writer for the Incidental Economist blog, intended to report on his cancer experience in […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Patient and Family Engagement

Engaging With a Complex Healthcare System

Editor’s Note: The complexity of the American healthcare system is difficult for patients, families and consumers to understand. It also frustrates clinicians and increases the risk that something will go wrong in the course of care. For those in need of care or simply trying to manage routine needs, such as ongoing medications, the system […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 134 post(s) at EngagingPatients.org

Check out my: Twitter


Patient and Family Engagement

Patients and Caregivers Engage Without Calling It ‘Patient Engagement’

In 2013, before I’d ever heard of “patient engagement,”  I spent many days at doctor’s offices, hospitals, chemo infusion suites, in ambulances, and with visiting nurses in our home. My first husband, Ahmad, had Stage IV bladder cancer, and we spent a draining 11 months in a desperate quest to save his life. I observed […]

Shared Decision Making

It’s Time to Truly Share the Chemo Decision with Cancer Patients

You (or a loved one) has cancer, but the latest round of chemotherapy has unfortunately had only a modest impact. While you’re acutely aware of the “wretchedness of life that becomes worn to the nub by [chemotherapy’s] adverse effects,” you’re also a fighter. How do you decide whether to continue with chemo? The answer to […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 20 post(s) at EngagingPatients.org

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