Tag Archives: bladder cancer

Patient and Family Engagement

Engaging With a Complex Healthcare System

Editor’s Note: The complexity of the American healthcare system is difficult for patients, families and consumers to understand. It also frustrates clinicians and increases the risk that something will go wrong in the course of care. For those in need of care or simply trying to manage routine needs, such as ongoing medications, the system […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter

Patient and Family Engagement

Patients and Caregivers Engage Without Calling It ‘Patient Engagement’

In 2013, before I’d ever heard of “patient engagement,”  I spent many days at doctor’s offices, hospitals, chemo infusion suites, in ambulances, and with visiting nurses in our home. My first husband, Ahmad, had Stage IV bladder cancer, and we spent a draining 11 months in a desperate quest to save his life. I observed […]