A large majority of patient and family advisory councils (PFACs) in 166 pediatric hospitals across the country made necessary adjustments at the beginning of the pandemic, continued meeting on a regular basis and maintained or surpassed pre-pandemic levels of participation. These results come from a survey performed by researchers from the Institute for Patient- and […]
The latest issue of the Beryl Institute’s Patient Experience Journal includes a patient narrative about coping with an unexpected diagnosis of HIV and challenges associated with accessing care. Beyond the author’s particular circumstances, which include being a university student from overseas, his story shows how a patient can grow through the experience of seeking medical […]
The Patient Experience Journal or PXJ invites authors to submit manuscripts for a special issue devoted to “sustaining a focus on human experience in the face of COVID-19.” The issue will be published this summer. Articles submitted for the special issue must be received by June 1, 2020. PXJ is an open access, peer-reviewed digital […]
Editor’s Note: This week, we revisit a post written by “e-Patient” Dave deBronkart, whose thoughts are always evolving. In an article published in July in the Beryl Institute’s Patient Experience Journal, deBronkart continued to develop ideas that he explored for Engaging Patients in April: the pace of progress toward engagement and the kind of change that […]
Editor’s Note: Next week, April 24–28, The Beryl Institute (one of Engaging Patients’ partner organizations) will celebrate Patient Experience Week. Each year, PX Week provides a focused time for organizations to celebrate and reenergize their commitment to improving the patient experience and honoring all healthcare workers for their efforts on behalf of patients. In this […]
Former First Lady Rosalynn Carter said, “You have either been a caregiver, you are a caregiver, you will be a caregiver, or someone will care for you.” There is no denying the role of caregiver can be one of the most unexpected and exhausting challenges a loved one faces, but it has also been referred […]
I’d like to start with a basic premise to consider in healthcare (and relevant to life in general, for that matter); that we have a series of experiences, driven by encounters with people or now even technology. These experiences are not just passing moments, but as defined, experiences are all that is perceived, understood and […]
The definition of patient experience closes with a critical phrase. One gaining increased attention as people talk about the subject of patient experience. Those words – across the continuum of care – anchor the definition with a clear statement that individuals do not simply frame their healthcare encounters in single clinical moments, but rather across […]