Tag Archives: COVID-19

COVID-19

‘Cruel’ Digital Race For Vaccines Leaves Many Seniors Behind

Editor’s note: The vaccine rollout in the United States is a vivid example of the uphill battle patients and their families often face dealing with the health care system. The stories vary, but in many places, including my home state of Massachusetts, the older age group that became eligible for COVID-19 vaccination after healthcare workers […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Going Door to Door in Little Havana to Build Trust in Testing, Vaccination

Little Havana is a neighborhood in Miami that, until the pandemic, was known for its active street life along Calle Ocho, including live music venues, ventanitas serving Cuban coffee and a historic park where men gather to play dominoes. But during the pandemic, a group called Healthy Little Havana is zeroing in on this area with […]

Encore Presentation

Leveraging a Bilingual Clinical Workforce for COVID-19 Care

Editor’s note: Dr. Joseph Betancourt, who led the effort described below, frequently uses social media and presentations to to convey what he observes and has learned about the overlapping pandemics of health disparities and COVID-19. In addition to the article below, interested readers will find many offerings that feature Dr. Betancourt on YouTube, including “Structural […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

COVID-19 Patient Credits Palliative Care for Her Successful Recovery

Bobye List is an inspiring exception to the heavy, often deadly, toll the pandemic has taken among older adults. At 78 years old, List was able to successfully manage a serious case of COVID-19 at home, where she lives alone, and has chosen to share her compelling story in a blog post and video for […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patient

Being a Cancer Patient During the COVID-19 Pandemic

Bill Gardner, Ph.D., has been writing for The Incidental Economist (where he is a regular contributor) about his experience as a cancer patient since early July after he received a diagnosis of oropharyngeal squamous cell carcinoma. In addition to telling his own health story, in posts that now number nine, Dr. Gardner reports on the global […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Engaging Patients Online

When False Information Goes Viral, COVID-19 Patient Groups Fight Back

For decades, people struggling with illnesses of all kinds have sought help in online support groups. This year, such groups have been in high demand for COVID-19 patients, who often must recover in isolation. But the fear and uncertainty regarding the coronavirus have made online groups targets for the spread of false information. And to […]

Family Engagement

Engaging Visitors as Care Partners

Visitation policies have been subject to tremendous change and debate during the pandemic. New guidelines from the Massachusetts Coalition for Serious Illness Care are designed to help organizations develop successful visitation policies for various care settings. As the Coalition indicates in the guidelines’ title – More than a Visitor: Balancing safety, connection and well-being at […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

Medical Students Help Families Navigate the ICU Experience

The pandemic has resulted in widespread stress and sadness, extending now through spring, summer and into fall. Thankfully, there are also positive stories, often focused on innovative solutions to the challenges COVID-19 poses for patients, families and clinicians. One example is a program developed by a health system in Charlotte, North Carolina, to help counteract […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


Engaging the Public

New Guidance for Promoting Behavior Change to Fight COVID-19

Wearing face masks, avoiding crowds and staying 6 feet away from people are new habits everyone should develop and sustain until the COVID-19 epidemic is under control. As has been reported in the media, compliance with these recommendations varies across the country, but even in neighborhoods where most people follow the guidance, committing to a […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19, Uncategorized

Advocating for Those Hit Hardest by the Pandemic: Nursing Home Residents

Penny Shaw is a writer and advocate working on behalf of individuals with disabilities and nursing home residents. A university faculty member and administrator with a Ph.D. in French literature, Shaw developed Guillain-Barre Syndrome, a rare neuromuscular condition, in 2001. In 2002 she moved to a nursing home in Braintree that specializes in neurorehabilitation, where […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 115 post(s) at EngagingPatients.org

Check out my: Twitter