Tag Archives: Patient Experience Journal

Patient Experience

Becoming an Engaged Patient—Lessons From a Student With HIV

The latest issue of the Beryl Institute’s Patient Experience Journal includes a patient narrative about coping with an unexpected diagnosis of HIV and challenges associated with accessing care. Beyond the author’s particular circumstances, which include being a university student from overseas, his story shows how a patient can grow through the experience of seeking medical […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter