Tag Archives: Shared Decision Making

Participatory Medicine

Lessons Learned From Patient Stories

Editor’s Note: This week, Engaging Patients revisits a post by Jan Oldenburg, editor of Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation. Jan interviewed 27 patients and caregivers whose stories are featured in the book. In this post, she highlights themes that emerged from the interviews and reflects on the central role patient stories can play […]

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Jan Oldenburg Jan Oldenburg, FHIMSS, is passionate about using digital tools to build a healthcare system where patients and caregivers participate as partners. She currently advises and mentors startups and consults with organizations who want to understand the evolving digital health landscape as the Principal in Participatory Health Consulting. Ms. Oldenburg has broad experience within all aspects of the healthcare ecosystem, including payers, providers, and integrated delivery systems. Most recently she was a Senior Manager in EY’s Health Advisory Practice. Prior to joining EY, Ms. Oldenburg was the Vice President of Patient and Physician Engagement in Aetna’s Accountable Care Solutions organization, where she worked with provider organizations to build collaborative ACO solutions. She also spent seven years as a manager and senior manager in Kaiser Permanente’s Digital Services Group, directing strategy and implementation for web and mobile products including clinical, payment, and administrative capabilities. Ms. Oldenburg has been a principal in several consulting companies focused on using the digital capabilities effectively in healthcare to engage consumers. She is the primary editor of Engage! Transforming Healthcare Through Digital Patient Engagement, published by HIMSS press and winner of “Best Book of 2013” honors at HIMSS 2014, as well as the principal Editor of Participatory Healthcare: A Person-Centered Approach to Transforming Healthcare to be published by CRC Press in June, 2016. She also is the author of the “Personal Health Engagement” chapter in the Third Edition of Medical Informatics, published in March, 2015 and the “Participatory Medicine” chapter of The Journey Never Ends, published in March, 2016, as well as a number of articles and blog posts. Ms. Oldenburg is the co-chair of the HIMSS Connected Health Committee and a frequent speaker and commentator on patient and physician engagement issues.

Jan Oldenburg has 3 post(s) at EngagingPatients.org

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Shared Decision Making

It’s Time to Truly Share the Chemo Decision with Cancer Patients

You (or a loved one) has cancer, but the latest round of chemotherapy has unfortunately had only a modest impact. While you’re acutely aware of the “wretchedness of life that becomes worn to the nub by [chemotherapy’s] adverse effects,” you’re also a fighter. How do you decide whether to continue with chemo? The answer to […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 20 post(s) at EngagingPatients.org

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Information Resources

Medical Librarians: Helping Patients Engage With Information

The recent emphasis on patient-centered care places a demand for quality information on both sides of the medical relationship. Physicians and nurses are tasked with communicating effectively in ever-smaller time segments. Patients must describe their symptoms and treatment progress and ask any pertinent questions in the same shrinking time frame. Additionally, some patients must work […]

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Barbara B. Jones Barb Jones is a health sciences librarian with the National Network of Libraries of Medicine, MidContinental Region. She is the Missouri coordinator and represents the six-state MidContinental Region as library advocacy project coordinator. Her work experience includes clinical librarianship in both hospital and clinic settings as well as program development, teaching and training in academic settings. She is particularly interested in developing new roles for librarians including patient safety and knowledge management, library assessment and evaluation, and advocacy issues. Barb has a master’s degree in library science from the University of Arizona. She is based at and serves on the library staff at the J. Otto Lottes Health Science Library at the University of Missouri.

Barbara B. Jones has 1 post(s) at EngagingPatients.org


Effective Communication SKills

Patients’ Communication Skills Matter, Too

The patient safety movement and efforts to honor patients’ preferences emphasize the importance of skillful communication on the part of physicians and other clinicians. Less attention has been paid to the effect of patients’ communication skills. In addition to catching errors, patients can use effective communication skills to improve their health and the medical services […]

Participatory Medicine

Empowering Patients: Build Confidence in Them to Ask the Hard Questions

The Patient Perspective I brought my 79-year-old dad to the emergency room because to me it looked like he’d had a stroke. He could not hold up his Carvel ice cream cup, and his mouth was drooling and sagging. After 11 hours of waiting in the ER and undergoing a CT scan, an attendant brought […]

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Randi Redmond Oster Randi Redmond Oster is author of Questioning Protocol, which helps patients navigate the healthcare system and medical professionals understand the patient perspective. She is a nationally acclaimed speaker on healthcare reform, shared decision-making and patient engagement. Randi spent approximately 20 years working at GE on complex aerospace systems and building profitable financial services businesses. She received a Black Belt in Six Sigma Quality and numerous leadership awards. The skills she gained at GE empowered her to effectively navigate the healthcare system and find opportunities for process improvements as she advocated in hospitals on behalf of her chronically ill son. Randi is president of Help Me Health, a business focused on the transformation of how healthcare thinks about and delivers patient experiences to achieve better outcomes and a better bottom line.

Randi Redmond Oster has 4 post(s) at EngagingPatients.org

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Regulatory Update

Patient Engagement: Not Just a Good Idea, It’s the Law

The case for patient engagement has historically been ethical (“It’s how people should be treated”) and clinical (“Engaged patients have better outcomes”). But what happens when patient engagement becomes the law? That question has become more pressing with the release of the final rule for the Quality Payment Program of the Medicare Access and CHIP […]

Through the Eyes of Patients

My Surgical Shared Decision: Trust the Doctor

My surgeon and I are discussing his planned use of sutures. He is standing, leaning against a wall. I am opposite him, lying on a gurney in a hospital gown, the IV taped to my hand dripping antibiotics as the clock ticks down to when I’ll be wheeled into the operating room. This may not […]

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Michael L. Millenson, President, Health Quality Advisors LLC Michael L. Millenson, president of Health Quality Advisors LLC, Highland Park, IL, is a nationally recognized expert on quality of care improvement, patient-centered care and web-based health. He is the author of the critically acclaimed book, Demanding Medical Excellence: Doctors and Accountability in the Information Age, and he is adjunct associate professor of medicine in the Department of Medicine at Northwestern University's Feinberg School of Medicine. National Public Radio called him “in the vanguard of the movement” to measure and improve American medicine. Prior to starting his own firm, Millenson was a principal in the health-care practice of a major human resources consulting firm. Before that, he was a healthcare reporter for the Chicago Tribune, where he was nominated three times for a Pulitzer Prize. He serves on the boards of the American Journal of Medical Quality and Project Patient Care.

Michael L. Millenson, President, Health Quality Advisors has 20 post(s) at EngagingPatients.org

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Shared Decision Making

Patients’ Shared Decision Making Styles: Accommodating Various Approaches

Dr. Michael J. Barry’s recent blog post makes an outstanding case for the positive impact of shared decision making and a powerful argument against many myths about it. My thoughts here are complementary and supportive. I am not a clinician. Rather, my perspective is from the vantage point of patients and their families. My efforts […]

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Andrew S. Gallan, PhD Andrew S. Gallan, PhD is an Assistant Professor, Kellstadt Graduate College of Business, DePaul University, Chicago, IL, faculty research fellow at the Center for Services Leadership at Arizona State University, and founder of Dignity in Action, Inc.

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Paths to Patient-Centered Care

Five Myths About Shared Decision Making

With shared decision making on the lips of many in health care conversations these days, I’d like to address five common myths about using shared decision making to make care more patient-centered. Myth #1: Face-to-Face Shared Decision Making Is the Goal Shared decision making is a process where patients and clinicians share information and collaborate […]

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Michael J. Barry, MD, President, Informed Medical Decisions Foundation As president of the Informed Medical Decisions Foundation, a division of Healthwise, Michael is responsible for overseeing its research and advocacy efforts. He is also chief science officer of Healthwise where he is responsible for ensuring the highest level of clinical accuracy in Healthwise decision support solutions, as well as the effectiveness of these solutions in helping people make better health decisions. Michael is past president of the Society for Medical Decision Making (SMDM) and the Society of General Internal Medicine. He has led many prominent research studies and published extensively in peer-reviewed journals and other print media on topics such as prostate cancer, BPH, prostate cancer screening and shared decision making. Michael continues to practice primary care and serves as medical director of the John D. Stoeckle Center for Primary Care Innovation at Massachusetts General Hospital. Michael holds an MD from the University of Connecticut Health Center and completed his residency at Strong Memorial Hospital and his fellowship at Harvard Medical School.

Michael J. Barry, MD, President, Informed Medical Decisions Foundation has 1 post(s) at EngagingPatients.org

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Shifting the Paradigm

Achieving Patient Engagement: No Easy Task

Sandra, a retired teacher with hypertension, has been Dr. Clarke’s patient for 20 years. When she arrives for her annual visit, she is given a clipboard with a paper form that asks her to list all of her medications and fill in her medical history, the same form she filled out last year. Sandra has […]

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Nancy B. Finn, M.Ed. Nancy B. Finn is a journalist, thought leader and patient advocate, focused on patient empowerment and engagement through the deployment of digital communication technology. She is the author of four books, including e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology . She blogs for the Society for Participatory Medicine at e-patients.net, and publishes her own blog. HealthCare Basics. She also is a contributing columnist and reviewer for the Journal of Participatory Medicine, and is a speaker at many national and international forums. Nancy is a member of the Board of Overseers and the patient advocate on the Safety and Quality Committee at Mount Auburn Hospital in Cambridge, MA, and the consumer advocate and member of Beth Israel Deaconess Medical Center Board.. She is also the Secretary and a board member of the Society for Participatory Medicine.

Nancy B. Finn, M.Ed. has 1 post(s) at EngagingPatients.org

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