Category Archives: Family Engagement

Family Engagement

Medical Students Help Families Navigate the ICU Experience

The pandemic has resulted in widespread stress and sadness, extending now through spring, summer and into fall. Thankfully, there are also positive stories, often focused on innovative solutions to the challenges COVID-19 poses for patients, families and clinicians. One example is a program developed by a health system in Charlotte, North Carolina, to help counteract […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 99 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

We Put Off Planning, Until a Medical Crisis Took Us by Surprise

Earlier this month, my husband picked up the phone and learned his 92-year-old father had been taken to the hospital that morning, feeling sick and short of breath. We were nearly 2,000 miles away, on a vacation in the mountains of southern Colorado. No, it wasn’t COVID-19. My father-in-law, Mel, who has diabetes, high blood […]

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Judith Graham Judith Graham writes the Navigating Aging series for Kaiser Health News, which focuses on medical issues and advice associated with aging and end-of-life care, helping America’s 45 million seniors and their families navigate the health care system. To contact Judith Graham with a question or comment, click here.

Judith Graham, Kaiser Health News has 3 post(s) at EngagingPatients.org


Family Engagement

Socially Distanced Visits – An Imperfect Solution for Long-Term Care

Editor’s Note: Judith Graham’s article (first published July 13, 2020, by Kaiser Health News) captures many important issues related to nursing home visitation policies adapted for COVID-19. I can report from personal experience that the socially distanced visits Graham describes, now available at many long-term care facilities, are an imperfect solution to a “heart-wrenching problem.” […]

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Judith Graham Judith Graham writes the Navigating Aging series for Kaiser Health News, which focuses on medical issues and advice associated with aging and end-of-life care, helping America’s 45 million seniors and their families navigate the health care system. To contact Judith Graham with a question or comment, click here.

Judith Graham, Kaiser Health News has 3 post(s) at EngagingPatients.org


Family Engagement

Can You Get Me a Screwdriver?

When I asked Dad the reason for his call, he cheerfully responded, “Well, we’re trying to figure out how to get out of here.” The “we” is my 92-year-old dad and his fellow residents in a locked memory care unit where they’ve been very well cared for and almost entirely free of COVID-19 but without […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 99 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

Redeployed Clinicians Enable Conversations With COVID Families

With visitors temporarily barred from hospitals, physicians across the country are using video apps to meet with family members to offer clinical updates or discuss end-of-life preferences for critically ill patients. South Shore Hospital, part of South Shore Health, in South Weymouth sought a new way to enable this important communication via FaceTime or Zoom […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 99 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

Sometimes Engagement Means Simply Not Giving Up

Working on a problem for a family member recently, I was reminded that persistence is an important tool for engaged patients and family members. Fortunately, the problem was not critical and has now been resolved. The experience, however, reinforced my frustration with the needless complexity of our healthcare system, which can bedevil even apparently simple […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 99 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

Empowering Family Members to Prevent Falls

Editor’s Note: This week’s Encore Presentation describes how the Memorial Rehabilitation Institute fixed a safety problem by increasing the engagement of family members. In addition to preventing patient falls, the program improved family communication and satisfaction and unexpectedly decreased the number of patients who needed to transfer to skilled nursing facilities. The Memorial Rehabilitation Institute received […]

Family Engagement

Engaging Patients and Families: Vital, Rewarding and Challenging

Earlier this month, when my almost-90-year-old father fell ill suddenly, I learned anew that engaging patients and family members in medical care is vital, rewarding and challenging. As a writer and editor, I have focused on patient safety and quality improvement, including the role of patients and family members, since 2004. Although well prepared to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 99 post(s) at EngagingPatients.org

Check out my: Twitter


Family Engagement

Laying the Foundation for Improved Outcomes

As a patient advocate for 10-plus years for my father, mother, and now for my spouse who has chronic heart disease, the topic of patient engagement really hits home. It’s becoming increasingly clear to me that if the healthcare industry is to succeed in reducing readmissions and improving outcomes, engagement must include the family. It […]

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Christine Winters Curator of EngagingPatients.org, Christine has a passion for healthcare -- enhancing the patient experience and patient safety. As an advocate for family members with Alzheimer's and heart disease, she takes a personal interest in the transformation of healthcare and looks for opportunities to play a role.

Christine Winters has 8 post(s) at EngagingPatients.org

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