Tag Archives: engaged patient

Personal Health Journey

Engaged in My Health Journey – An Experiment of One

Editor’s Note: On his personal blog, Health Hats, Danny van Leeuwen reports on the 10th annual Healthcare Literacy in Research Conference, held in Washington, D.C., October 21–23. Danny attended as a PCORI Ambassador. Although he didn’t find exactly what he went looking for — “co-produced research (researcher and patient partners) about lay people, professionals, and communities understanding each other to […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 3 post(s) at EngagingPatients.org

Check out my: Twitter


Encore Presentation

Engaged in My Health Journey – An Experiment of One

Editor’s Note: Danny van Leeuwen is a remarkably prolific blogger, and I look forward to reading all his posts. In a recent post, he expressed frustration with medication lists that defy correction and constantly default to old or incorrect information despite his attempts and the sincere efforts of his providers to make them right. My […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 3 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Safety

Finding Solutions in the Grassroots When Culture and Leadership Fail

A few years back, I injured my right leg and had to go urgently to an emergency room in a busy suburban hospital not far from my home. As both a physician and engaged patient, I observed numerous patient safety lapses during my care, none of which, fortunately, resulted in harm. Although I was distressed […]

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Daniel L. Cohen, MD, FRCPCH, FAAP Daniel Cohen is a consultant with Martin, Blanck & Associates in Alexandria, Virginia. Previously he was chief medical officer for Datix, Ltd, a patient safety software company headquartered in London, England. He also served as chief medical officer for the U.S. Department of Defense (DoD) TRICARE health plan, covering over 9.5 million beneficiaries worldwide, where he provided oversight for the DoD’s patient safety, clinical quality, and population health programs. Cohen was initially trained in pediatrics and hematology/oncology at the Boston Medical Center, Boston University, and the Boston Children’s Hospital, Dana Farber Cancer Institute, Harvard Medical School. He is a senior fellow of the Royal College of Paediatrics and Child Health and a fellow of the American Academy of Pediatrics.

Daniel L. Cohen, MD, FRCPCH, FAAP has 1 post(s) at EngagingPatients.org


My Health Journey

Engaged in My Health Journey—An Experiment of One

When I travel on my health journey, I like it best when I have a destination, companions, and a map. I value the experience as often as I can, learn from it, and adjust when I don’t get where I want to go at a satisfactory speed. So, destination = personal health goals. Companions=health team. […]

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Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 3 post(s) at EngagingPatients.org

Check out my: Twitter