Robin Bolduc isn’t the type of person who takes “no” for an answer — particularly when it comes to fixing her husband’s wheelchair. Her husband, Bruce Goguen, 69, is paralyzed from multiple sclerosis. And without his chair, he would be stuck in bed, at risk of developing pneumonia or pressure sores that could lead to […]
Editor’s Note: On his personal blog, Health Hats, Danny van Leeuwen reports on the 10th annual Healthcare Literacy in Research Conference, held in Washington, D.C., October 21–23. Danny attended as a PCORI Ambassador. Although he didn’t find exactly what he went looking for — “co-produced research (researcher and patient partners) about lay people, professionals, and communities understanding each other to […]
Editor’s Note: Danny van Leeuwen is a remarkably prolific blogger, and I look forward to reading all his posts. In a recent post, he expressed frustration with medication lists that defy correction and constantly default to old or incorrect information despite his attempts and the sincere efforts of his providers to make them right. My […]
When I travel on my health journey, I like it best when I have a destination, companions, and a map. I value the experience as often as I can, learn from it, and adjust when I don’t get where I want to go at a satisfactory speed. So, destination = personal health goals. Companions=health team. […]