Category Archives: Personal Health Journey

Personal Health Journey

Engaged in My Health Journey – An Experiment of One

Editor’s Note: On his personal blog, Health Hats, Danny van Leeuwen reports on the 10th annual Healthcare Literacy in Research Conference, held in Washington, D.C., October 21–23. Danny attended as a PCORI Ambassador. Although he didn’t find exactly what he went looking for — “co-produced research (researcher and patient partners) about lay people, professionals, and communities understanding each other to […]


Danny van Leeuwen Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with MS, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. Danny focuses on learning what works for people: patient-centered research, communication at transitions of care, health planning, informed decision-making and technology supporting solutions created by and for people. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Communication and Dissemination Advisory Panel. Danny also serves on a technical panel advising CMS on quality-measure development and is active in the Society for Participatory Medicine. Danny blogs weekly ( and was recently published in BMJ.

Danny van Leeuwen, Opa, RN, MPH, CPHQ has 4 post(s) at

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