Category Archives: Patient Perspectives

Insights and observations from patients

Patient Perspectives

What do patients think about artificial intelligence?

In “Patient apprehensions about the issue of artificial intelligence [AI] in healthcare” researchers from the Mayo Clinic Rochester report on what they learned from a series of focus groups they held in late 2019 to early 2020. The goal of the research was “to understand how patients view the use of AI in the healthcare.” […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Perspectives

An Engaged Patient Helps Others as He Confronts Bad News

It’s time for an update on Bill Gardner, an engaged patient, psychologist, researcher, educator and writer in Canada who has been chronicling his experience with cancer for about a year. The news is not good. Earlier this month, in a post titled “SHATTERED,” Gardner explained that his cancer has continued to grow despite extensive radiation […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Perspectives

The Good Fight: From Patient to Mentor to Registered Nurse

All I knew was that something was seriously wrong with me. I had been experiencing blurred vision and intense headaches for quite some time, so I went to the Emergency Department to get checked out. I knew my blood pressure was high, but wasn’t sure if that was causing my headaches and vision problems. Part […]

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Tanica Brown Tanica Brown is a nursing student and a patient mentor for Cricket Health, a developer of scalable healthcare technology services designed to improve the care and treatment of people with CKD who are at high-risk of progressing to ESRD. A white paper on the use of multi-channel education technology to help patients manage late-stage CKD and ESRD is available here.

Tanica Brown has 1 post(s) at EngagingPatients.org


Patient Perspectives

My Journey With Kidney Failure—From Engaged Patient to Patient Mentor

I was placed on dialysis when I was 30 years old. Before my diagnosis of end-stage renal disease (ESRD) or kidney failure, I had been an active, adventurous world traveler. I spent time in the Middle East, first in the Army, then later as a civilian defense contractor. When I finally rotated back to Kansas […]

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Michael Fields Michael Fields is a patient mentor for Cricket Health, a developer of scalable healthcare technology services designed to improve the care and treatment of people with CKD who are at high-risk of progressing to ESRD. A white paper on the use of multi-channel education technology to help patients manage late-stage CKD and ESRD is available here.

Michael Fields has 1 post(s) at EngagingPatients.org


Patient Perspectives

A Tale of Two Organizations

One Friday in late April, I was at a conference and couldn’t stop coughing. I thought it was allergies or my asthma acting up. I kept taking Benadryl and using my inhaler, but the croupy cough kept getting worse. I left early and headed home. But, by 6pm that evening, I knew I needed to […]

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Linda Kenney Executive Director and President of MITSS (Medically Induced Trauma Support Services, Inc.), founded the organization in 2002 as the result of a personal experience with adverse medical event, when she identified the need for support services in cases of adverse events and outlined an agenda for change. Since that time, she has been a tireless activist for patient, family, and clinician rights. She has become a nationally and internationally recognized leader in the patient safety movement and speaks regularly at healthcare conferences and forums. In 2006, Linda was the first consumer graduate of the prestigious HRET/AHA Patient Safety Leadership Fellowship. That same year, she was the recipient of the National Patient Safety Foundation’s esteemed Socius Award, an annual award given in recognition of effective partnering in pursuit of patient safety. She has authored and contributed to a number of publications on topics including the emotional impact of adverse events on patients, families, and clinicians. Linda serves on the boards of the Massachusetts Coalition for the Prevention of Medical Errors, National Patient Safety Foundation and Planetree.

Linda K. Kenney has 1 post(s) at EngagingPatients.org