Tag Archives: patient advocate

Price of Engagement

Patient Advocates Get Burned Out, Too

 “I get tired. I get overwhelmed. I get discouraged. I get disengaged. I get disheartened.”* I recently stumbled onto a series of posts online written by dedicated, accomplished patient advocates (including the one quoted above) describing their frustrations and, in some cases, their withdrawal from activism. In today’s shorthand, we’d say they’re suffering from burnout. […]

Tags:

Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 37 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Advocates

Engage Patients as Consumers, the Airbnb Way

When it comes to engaging patients, healthcare should take a cue from consumer-facing industries. Why? Patients are consumers. We’ve begun to see a major shift in the healthcare landscape. In the age of Google, patient communities and advocacy organizations, patients are increasingly empowered to take charge of their own health and be the CEO of their […]

Tags:

Lilly Stairs Since being diagnosed with psoriatic arthritis and Crohn’s disease in 2011, Lilly Stairs has dedicated her life to patient advocacy. Lilly currently works as the head of patient advocacy at Clara Health where she is responsible for conceiving and executing patient engagement strategy and ensuring the patient voice remains firmly at the center of the company. She is a board member for the American Autoimmune Related Diseases Association and also works closely with notable healthcare and biotech companies to ensure their initiatives remain patient-centric.

Lilly Stairs has 1 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Perspectives

The Good Fight: From Patient to Mentor to Registered Nurse

All I knew was that something was seriously wrong with me. I had been experiencing blurred vision and intense headaches for quite some time, so I went to the Emergency Department to get checked out. I knew my blood pressure was high, but wasn’t sure if that was causing my headaches and vision problems. Part […]

Tags:

Tanica Brown Tanica Brown is a nursing student and a patient mentor for Cricket Health, a developer of scalable healthcare technology services designed to improve the care and treatment of people with CKD who are at high-risk of progressing to ESRD. A white paper on the use of multi-channel education technology to help patients manage late-stage CKD and ESRD is available here.

Tanica Brown has 1 post(s) at EngagingPatients.org