Patient Empowerment

Best Wishes to Liz Salmi—An Update

Photo by Alberto Frías on Unsplash

Since her brain surgery in October 2021, Liz Salmi has continued to blog and tweet about her recovery. The news is good, and as always, Liz’s reporting is honest, informative and inspiring. She’s been blogging on her website,, where she recently reflected on the question,

What is harder: starting something new, or returning to something you used to do after an absence?

Having an “insult” to the brain is not a reflection on me, the relationships I’ve developed over my entire life, or my approach to doing the hard work.

Best wishes to Liz for continued recovery!


I featured an article by Liz Salmi on this blog just two weeks ago and  want to pass along some personal news she recently shared online. Routine monitoring has revealed that her brain cancer, in remission for the past 12 years, is again active, and she is preparing to have surgery in the next few weeks. Liz relays this news and further details in an Oct 1 post on her website, The Liz Army.

For readers not familiar with Liz, she describes herself as “curious person turned citizen informaticist, known for turning my brain cancer diagnosis into an open-source chronicle of the patient experience.” She is currently senior strategist of research dissemination for OpenNotes, the movement based at Beth Israel Deaconess Medical Center in Boston that promotes full access to health information for patients by sharing clinical visit notes.

On her website she describes having “put her digital; communications skills to use” immediately after her original brain cancer diagnosis “by blogging, chronicling her daily symptoms, and seeing how much she could learn from her online patient portal.” Years later, she is among the most effective and influential advocates for the right and power of patients engaged as full partners in care. The effect of her knowledge and commitment extends through many organizations, including the Society for Participatory Medicine, American Medical Informatics Association, the National Brain Tumor Society and more.

The outpouring of well wishes on Twitter after Liz relayed this news is evidence of her importance to so many other patients and professionals throughout health care. I, too, send best wishes for her upcoming surgery and recovery and look forward to her posts and the collective wisdom of her army going forward.


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at

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