Category Archives: Patient Advocates

Patient Advocates

We Found the Missing Link – Patient Advocates

When my world became focused on patient safety 30 years ago, it wasn’t only because of my personal experience. It became important because, by talking to others, I heard of many other stories where medical care went wrong or mistakes were made, and though the patients or their families saw it coming, they did not […]

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Ilene Corina is president and founder of the Pulse Center for Patient Safety Education and Advocacy. Corina has served on the board of organizations including The Joint Commission and the National Patient Safety Foundation and has won numerous awards for her work as an educator and advocate. Corina is the author of "Rants of a Patient Safety Advocate: Stories from the Bedside." Learn more about Corina and her work at www.icorina.com.

Ilene Corina, BCPA has 4 post(s) at EngagingPatients.org


Chronic Illness Advocacy, Patient Advocates

Sneha Dave, Leading a New Generation of Engaged Patients

Last week I wrote about a case study presented in a new book from the National Academy of Sciences’ Roundtable on Health Literacy. The book presents the proceedings of a recent workshop focused on helping children, adolescents and young adults engage in their own health and healthcare. This week I want to mention a second […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 111 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Advocates

Patient Advocates Need to Keep an Open Mind

As a patient advocate, I received a call from a woman who was angry that she was not permitted to see her husband in the hospital. She said her husband was too tired to speak up and she knows other people were able to visit loved ones. She couldn’t believe that at this hospital no one would […]

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Ilene Corina is president and founder of the Pulse Center for Patient Safety Education and Advocacy. Corina has served on the board of organizations including The Joint Commission and the National Patient Safety Foundation and has won numerous awards for her work as an educator and advocate. Corina is the author of "Rants of a Patient Safety Advocate: Stories from the Bedside." Learn more about Corina and her work at www.icorina.com.

Ilene Corina, BCPA has 4 post(s) at EngagingPatients.org


Patient Advocates

Surviving Maternal Sepsis Leads to Patient Advocacy

Editor’s Note: This post, which describes Sarah Kiehl’s experience with maternal sepsis, first appeared in ImproveDx,  digital newsletter of the Society to Improve Diagnosis in Medicine (SIDM). Kiehl is a patient partner in SIDM’s Patients Improving Research in Diagnosis (PAIRED) project. She has also shared her story on the website of the Sepsis Alliance, the organization that launched […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 111 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Advocates

Engage Patients as Consumers, the Airbnb Way

When it comes to engaging patients, healthcare should take a cue from consumer-facing industries. Why? Patients are consumers. We’ve begun to see a major shift in the healthcare landscape. In the age of Google, patient communities and advocacy organizations, patients are increasingly empowered to take charge of their own health and be the CEO of their […]

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Lilly Stairs Since being diagnosed with psoriatic arthritis and Crohn’s disease in 2011, Lilly Stairs has dedicated her life to patient advocacy. Lilly currently works as the head of patient advocacy at Clara Health where she is responsible for conceiving and executing patient engagement strategy and ensuring the patient voice remains firmly at the center of the company. She is a board member for the American Autoimmune Related Diseases Association and also works closely with notable healthcare and biotech companies to ensure their initiatives remain patient-centric.

Lilly Stairs has 1 post(s) at EngagingPatients.org

Check out my: Twitter