Editor’s Note: This post, which describes Sarah Kiehl’s experience with maternal sepsis, first appeared in ImproveDx, digital newsletter of the Society to Improve Diagnosis in Medicine (SIDM). Kiehl is a patient partner in SIDM’s Patients Improving Research in Diagnosis (PAIRED) project. She has also shared her story on the website of the Sepsis Alliance, the organization that launched […]
Editor’s note: This post brings patients into the diagnostic process as informed, engaged partners by explaining that diagnosis is a complex process, not a simple answer. Written by an experienced patient advocate, this column originally appeared in the “Dx IQ” series on the website of the Society to Improve Diagnosis in Medicine. SIDM works in […]
Engaging in research is among many ways patients are improving the healthcare system and contributing to medical knowledge. Patients have always being involved in research as participants in clinical trials; now they are also helping to design, implement and evaluate research. PCORI—the Patient Controlled Outcomes Research Institute)—is one such program that includes patients as equal […]