Category Archives: Price of Engagement

Price of Engagement

Patient Advocates Get Burned Out, Too

 “I get tired. I get overwhelmed. I get discouraged. I get disengaged. I get disheartened.”* I recently stumbled onto a series of posts online written by dedicated, accomplished patient advocates (including the one quoted above) describing their frustrations and, in some cases, their withdrawal from activism. In today’s shorthand, we’d say they’re suffering from burnout. […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

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