Category Archives: Patient Stories

Patient Stories

Mini-Biographies Help Clinicians Connect With Patients

Bob Hall was recovering from yet another surgery in March 2014 when a volunteer walked into his hospital room. It had been a rocky recovery since his lung transplant three months earlier at the William S. Middleton Memorial Veterans Hospital in Madison, Wisconsin. The volunteer wasn’t there to check on his lungs or breathing. Instead, […]

Patient Stories

Narratives Describe Missed Opportunities to Avoid Diagnostic Error

Recent efforts to understand and mitigate diagnostic error fully acknowledge the importance of patients and families as sources of information and feedback. While recognition is progress, patients and families are still not routinely consulted in diagnostic error research or in practice for the information that they alone can offer. A study published in Health Affairs represents […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Patient Stories

For Some Patients, Writing is Engagement

People write for different reasons: to examine experience, sharpen thinking, share lessons learned, advocate for others, and inspire action. In all cases, writing engages us in reflection and offers a way to engage with others. Health care social networks, like Inspire and Mayo Clinic Connect, encourage patients and caregivers to use writing and other media to engage by reflecting […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter