Tag Archives: end-of-life care

Race and Ethnicity in Medicine

A Tremble and a Lump: Why Race Matters in End-of-Life Conversations

Editor’s note: Healthcare decisions are deeply personal and often reflect race, ethnicity, gender and experience. In a post for The Conversation Project (excerpted below), Naomi Fedna relates a personal story and describes how being a black woman affects her experience of care planning. When I first joined IHI’s Conversation Project (TCP) team as a project […]

Advance Care Planning

End-of-Life Care Planning Is Patient Engagement, Too

Anticipating and planning for the future is an important way for each of us to engage in healthcare for ourselves, friends and family members. Being self-employed, I’m prompted to plan for the coming year when I choose a health insurance plan, which involves anticipating what my medical needs will be. I’ve been lucky so far, […]


Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

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