Family Engagement

Laying the Foundation for Improved Outcomes

As a patient advocate for 10-plus years for my father, mother, and now for my spouse who has chronic heart disease, the topic of patient engagement really hits home.  It’s becoming increasingly clear to me that if the healthcare industry is to succeed in reducing readmissions and improving outcomes, engagement must include the family.  It may seem like an obvious statement to make when you’re talking about an elderly parent or a child, but it’s equally important for the spouse or adult sibling.  

I had always looked to my husband for his sound judgment and clear thinking, until his most recent incident of heart failure which was brought on by arrhythmia.  His mental acuity was hampered and I realized I would need to play a more active role in managing his condition — assure his discharge instructions are followed, monitor his compliance in taking prescribed meds, get smart about salt intake, etc – if I wanted him to rebound.

That said, I believe any discussion of patient engagement or collaborative care must embrace the family.  I was encouraged to see in a recent all-day patient engagement program, sponsored by the National  Patient Safety Foundation (NPSF) that  leading healthcare organizations are starting to step up to the challenge of patient and family-centered care.  Admittedly, it will mean a real cultural change for many organizations and physicians.  However,  I’m convinced it is the only way we can successfully change patient behavior and see measurable improvement in outcomes.

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Christine Winters Curator of EngagingPatients.org, Christine has a passion for healthcare -- enhancing the patient experience and patient safety. As an advocate for family members with Alzheimer's and heart disease, she takes a personal interest in the transformation of healthcare and looks for opportunities to play a role.

Christine Winters has 8 post(s) at EngagingPatients.org

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1 Comment

  • John King says:

    Totally agree. “Patient” engagement needs to be inclusive of all the people engaged in the care delivery process. While critical that we remain patient-centered, engagement will only work if the information shared changes behaviors that in turn drive desired outcomes. @PatientDialog

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