Category Archives: Engaging in Research

Engaging in Research

Patient-Centered Research to Improve Diagnosis of Heart Disease in Women

A new report from two organizations that support patient engagement reflects discussions that took place during a virtual day-long meeting devoted to improving the diagnosis of heart disease in women. Although traditionally considered a “man’s disease,” heart disease is common among women. It is, however, often misdiagnosed, undertreated or dismissed as a psychosomatic manifestation of […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 137 post(s) at EngagingPatients.org

Check out my: Twitter


Engaging in Research

New Study on Long COVID Is Based on Patient Reporting

In a recent blog post, Frances Collins, M.D., Ph.D., director of the National Institutes of Health, highlights the work of the COVID Symptom Study, an international effort to support COVID-19 research with patient-reported health data. More than 4.6 million people are currently using the group’s smartphone app to contribute their data to the project. The […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 137 post(s) at EngagingPatients.org

Check out my: Twitter